About Us

Hope for HIE began with a virtual network of parents seeking to connect after their child had been diagnosed with HIE (Hypoxic Ischemic Encephalopathy). Since beginning on Facebook in 2010, the network has grown to serve thousands of families worldwide. The organization was incorporated legally in the state of Michigan in 2013 and is governed by a U.S.-based Board of Directors. 

We believe that hope is found in the journey, regardless of outcome.

Hope for HIE is dedicated to promoting awareness, education and support for HIE, worldwide, to fulfill our mission and vision serving communities affected by HIE.  No other formal organizations are focused on serving this community.

Hope for HIE is run solely by volunteers. The Board of Directors is responsible for the strategic direction and management of foundation operations. We have a robust internationally-represented volunteer community that helps facilitate our organizational initiatives.

Hope for HIE has made the transition from solely a social media support network, to a recognized, legal, non-profit organization, with formal 501(c)3 designation approved in September 2014.  Our three year strategic plan outlines how we plan to fulfill our mission, vision and values through 2017.  

We hope you will join us in this quest to provide more resources, education and support for families like ours. You can help most by becoming more involved. Donate, volunteer or help us spread the word about Hope for HIE. 

Don't forget to connect with us on Facebook!

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