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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

HIE Hospital Ambassadors

Our ambassadors bring local, experienced support to bridge the gap, connecting families with essential resources on their HIE journey.

The journey through an HIE diagnosis can be complex and overwhelming. Families often need guidance, emotional support, and detailed information to navigate the challenges they face, whether that’s within the first few weeks or later on as new diagnoses, impacts, and outcomes emerge.

Our HIE Hospital Ambassador Program offers families access to an experienced HIE community member who is deeply familiar with the participating hospital and its services, as well as the local community. Ambassadors go through extensive training to “be the bridge” between their local hospitals and connect families to Hope for HIE’s longitudinal support resources, including the latest news, programs, services, and initiatives tailored to each family’s unique needs.

Ambassadors also facilitate in-person events in the local area, providing opportunities to connect with other HIE families, share experiences, and expand support networks.

We know this model works, as we’ve seen many other NICU support organizations find success, and we know based on years of feedback from our community that families want dedicated support tailored to HIE. Together, we ensure that every family has the resources and connections they need to navigate this journey with hope and confidence.

Tina Santos

Seattle Children’s Hospital
Seattle, WA

“Seattle has always been home, so when my daughter needed extensive care, it was a no-brainer to choose Seattle Children’s Hospital. After receiving my daughter’s HIE diagnosis, I needed a community that ’gets it’ and resources to help us on this journey, and that’s exactly what we received after a friend referred me to Hope for HIE. Now, I want to fill in the gaps I felt during the early days of our child’s HIE diagnosis by acting as that local, in-person contact for support I wish I had. As your HIE Hospital Ambassador, I hope to provide healing, provide you with connection and support, and make your journey more manageable.”


INTERESTED IN LAUNCHING THE AMBASSADOR PROGRAM IN YOUR AREA?

Contact us to learn about joining our next group of ambassadors — assembling in Fall 2024, launching in 2025!

Interest Form

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