Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

Medical Advisory Board

Our positive power is in our people, bringing together families, clinicians, researchers and the global community.

Hope for HIE is a US-based 501(c)(3) non-profit organization with a worldwide support network and presence, dedicated to promoting awareness, education and support for Hypoxic Ischemic Encephalopathy (HIE). The organization was incorporated legally within the State of Michvolunteer-based.

Hope for HIE’s Board of Directors:

Officers

David Ford

President

Serving since 2016

Matt Kegyes

Treasurer

Serving since 2016

Becky Detlef

Secretary

Serving since 2020

Directors

Jennifer Kegyes

Vice President, Family & Professional Outreach

Serving since 2019

Crystal Kostick

Director at Large

Serving since 2021

Ex-Officio

Betsy Pilon

Executive Director

Serving since 2013

Our volunteer community is large and located in multiple countries around the world. The United Kingdom, Australia, Canada and the United States are our largest represented countries today. Because our mission is to have international reach, this important group of volunteers (mainly parents) give time, talent and treasure to six committees that support Hope for HIE’s mission and vision with a wide range of skills and experience.

Medical Advisory Board:Hope for HIE’s Medical Advisory Board is a multidisciplinary board that provides insight, scientific direction, and expertise to the Foundation from leading academic and medical institutions around the world. The members of the Medical Advisory Board are recognized experts in treating patients, leading research on HIE, and developing best practices in treating HIE and supporting families in their respective disciplines.

Led by Jennifer Kegyes, MA, CCC-SLP, Hope for HIE’s Professional Outreach Chair, this board meets regularly and works on a variety of initiatives to provide insight on patient and family educational materials to ensure accurate information is published, identify collaborations for the foundation, and working with foundation leadership to move the mission of Hope for HIE forward.

Medical Advisory Board

Co-Chairs

Adriana Salcido

MSW – Board Chair

NICU & Early Childhood Social Worker

Jennifer Kegyes

MA, CCC-SLP

Professional Outreach Chair, Board of Directors

Neonatalogy

Lina Chalak

MD, MSCS

UT Southwestern, Mild HIE Research

Mohamed El Dib

MD

Brigham & Women’s Hospital, President, Newborn Brain Society

Sue Hall

MD, MSW

PsychoSocial Support in the NICU

Nursing

Brooke Rakes

PhD, RN, RNC-NIC

Neuro ICN Advanced Clinician

Kathi Randall

RN, MSN, CNS, NNP-BC

Neonatal Nurse Practitioner, Synapse Care Solutions

Jayne Solomon

MSN, RNC-NIC, NNP-BC

Neonatal Nurse Practitioner, St. Joseph Women’s Hospital

Occupational Therapy

Amy Cutler

OTR/L

Pediatric OT & HIE Parent

Sue Ludwig

OTR/L

Neonatal Occupational Therapy, President, NANT

Tamara Smith

OTR

Pediatric OT & HIE Parent

Pediatric Neurology

Monica Arroyo

MD

Joe DiMaggio Children’s Hospital

Bhooma Aravamuthan

MD, DPhil

Movement Disorders Specialist & Lab Researcher, Washington University, St. Louis

Danielle Barber

MD, PhD

Clinician, Lab Researcher & HIE Parent, Children’s Hospital of Philadelphia

Chris Carosella

MD

Sleep Medicine, Johns Hopkins University

Hannah Glass

MD

UCSF Benioff Children’s Hospital

Monica Lemmon

MD

Duke University

Adam Numis

MD

Epileptologist, UCSF Benoiff Children’s Hospital

Brittney Pryor Craig

MD

Sleep Medicine, Cook’s Children’s Hospital

Janet Soul

MD

Epileptologist, Boston Children’s Hospital

Neuropsychology

Seth Warschausky

PhD

Physical Medicine & Rehabilitation

Ed Hurvitz

MD

Physical Therapy

Ashley Fielding

PT

Sara Morgan

DPT

Pediatrics

Beth Robinson Swartz

MD

Pediatric Dentistry & Oral-Maxillofascial Surgeon

Scott Siegel

MD, DDS, FACS, FICS, FAAP

Social Work & Counseling

LaTrice L Dowtin

PhD, LCPC, NCSP, RPT

Evelyn Mascarenas

MSW

Adriana Salcido

MSW

Speech & Language Pathology

Nancy Calamusa

MA, CCC-SLP

Jennifer Kegyes

MA, CCC-SLP

Carole Zangari

PhD, CCC-SLP

Tina Moreno

MA, CCC-SLP

Vision Specialists

Christine Roman-Lantzy

PhD

Deborah Zelinsky

OD, FNORA

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