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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Amanda and Sam’s Story: Choosing Ruby Back

April 30th, 2022  | HIElights of Hope

Amanda and Sam met in Colorado, eventually getting married in 2017, after moving to Edmonton, Alberta, in Canada. Sam worked as a manager at a climbing gym before the pandemic, while Amanda, a registered social worker, had worked as an addiction counselor with youth experiencing substance use and mental health-related concerns. Through her profession, Amanda had been exposed to the […]

David’s Story: One Step at a Time

April 30th, 2022  | HIElights of Hope

The waiting is the hardest part Every day you see one more card You take it on faith, you take it to the heart The waiting is the hardest part -From The Waiting, sung by Tom Petty and the Heartbreakers Before the birth of his daughter, Scarlett, in October 2014, David never really thought there was any problem too daunting […]

Suzi’s Story: A Journey from Darkness into Light

April 30th, 2022  | HIElights of Hope

In 2014, Suzi made the big move from Chicago to Los Angeles to be with her husband, ready to find out what this new chapter in her life had in store for her. Together, they had this vision of what their future would look like. As people who felt most at home when they were closest to Earth, they dreamed […]

Lauren’s Story: Terrible Things Happened, But George Happened Too

April 30th, 2022  | HIElights of Hope

“To parents who have recently experienced an HIE event with their new baby—I am so very sorry that you and your baby are going through this. I want to share with you the best thing that I learned to be true. In those first days, your touch, voice, and fierce unconditional love is what makes your baby’s heart full.  You […]

Jori Bogetz, MD joins Medical Advisory Board

Jori Bogetz, MD joins Medical Advisory Board

April 29th, 2022  | News

We continue building out the most comprehensive multidisciplinary group to advise us as we grow and fulfill our mission and are excited to announce the appointment Dr. Jori Bogetz to Hope for HIE’s Medical Advisory Board. Dr. Bogetz brings incredible expertise and passion to the focus area of pediatric palliative care medicine. Through her work, she helps children and families who […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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