Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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What Should’ve Been – An HIE Dad’s Poem

October 14th, 2015  | Care  |  By NICK BURTON

What should’ve been A dream unfulfilled, but forever imagined So unextrordinary a fantasy, unrealized Should’ve been What never was Bonding time and cord cutting A wheelchair ride and balloons A clever announcement with rustic font Never was What was Barely saved, Mama shaking Just met, say goodbye for ambulance trip Signing forms and breaking down Papa yells at strangers to […]

GoTo Seat

GoTo Seat

February 19th, 2015  | Equipment  |  By ANN GOELLER

Firefly makes multiple excellent products for children who struggle with mobility or seating. For some children, the GoTo seat has been a great fit. For our little one, it doesn’t work in all situations because of her low trunk control and head support. We have the size 2. If the seat our daughter is in can recline, it works well. […]

Fisher Price Space Saver high chair

Fisher Price Space Saver high chair

February 19th, 2015  | Equipment  |  By ANN GOELLER

This compact high chair was a lifesaver for us when our daughter was smaller. We used it for positioning, feeding and therapy. The size of the chair is great, because it is very portable and easily straps onto a typical chair. We used this often when we went out to eat or to visit friends. The seat itself works great […]

Melissa & Doug Jumbo Knob puzzles

Melissa & Doug Jumbo Knob puzzles

February 19th, 2015  | Toys  |  By ANN GOELLER

These puzzles are excellent for little ones who struggle with fine motor skills. We have at least three of these puzzles. The knobs are the perfect size for a little one who struggles with fine motor skills and grabbing items with their hands. The puzzles also come in different themes, including shapes and colors and farm animals. We found several […]

Bright Light Star Pillow

Bright Light Star Pillow

February 19th, 2015  | Therapy  | Toys  |  By ANN GOELLER

This is an excellent toy for kids with CVI or other vision problems. We absolutely love this toy. Our daughter has CVI and can see it very well. It grabs her attention every time. And it is very soft and lightweight, so when she pulls it down on her face (which she often does) it does not hurt. It is […]

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