Meet Kaycie Liptak! She’s one of our HIE Awareness Month ambassadors this year, and is a Super Sibling to Drew. Learn more about her journey and experience below in our Q&A: What is your story and connection to HIE? My sister was born with it when I was 6 years old. She spent 69 days in the NICU. It was […]
During the month of April, Hope for HIE will be championing the HIE Awareness Month campaign online, and regionally, to promote awareness, education and, most importantly, support. Two to three of every 1,000 live births are impacted by Hypoxic Ischemic Encephalopathy, or HIE, a type of brain injury. More sustain an HIE injury after birth, due to multiple reasons, including near […]
I’ve read about intensive therapy centers in the Hope for HIE groups since Neala was a baby (she’s now 9 years old). It was so expensive and far away. Not to mention the fact that Neala could not even stand to ride in the car, let alone tolerate a cross-country flight. Years later, when we were financially able to sign […]
Cerebral palsy is one of the more common diagnoses from HIE. While HIE-acquired cerebral palsy only accounts for roughly 10-15% of all cerebral palsy causes, roughly 40% of children diagnosed with HIE will go on to be diagnosed with cerebral palsy.
We are sharing all about the connection between HIE and cerebral palsy during March, and sharing resources for our community to learn more.
Epilepsy is one of the largest impacts from HIE, Hypoxic Ischemic Encephalopathy. Children across all outcomes can develop epilepsy, and HIE is a leading cause of several rare types of epilepsy such as Infantile Spasms, Lennox-Gastaut Syndrome, and ESES. Since seizures and HIE are so common, we recommend all families learn more about Seizure Action Plans, and go through Seizure First Aid training. Hope for HIE also supports all legislative efforts to improve the prevalence of Seizure Action Plans and Seizure First Aid through the Seizure Safe School campaign through the Epilepsy Foundation.
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