If your child has experienced seizures, even if they are under control, or you had resolved neonatal seizures, a Seizure Action Plan is an important tool for anyone in your child’s life to be aware of. Seizure Action Plans outline what to do in case of a seizure for your child. This could include when to call 911, a bit […]
Epilepsy truly embodies a “trial and error” approach sometimes. Certain types of seizure disorders and seizure types are more responsive to specific medications than others. Epilepsy in HIE is pretty common, and HIE is a leading cause of some specific types of epilepsy and seizure disorders. Why are seizure problematic? Sometimes they can inhibit development, learning, and focus. Sometimes they […]
A PICU Journey with HIE – by Amy Bannister DiGiacomo Expectant parents say this all the time. I probably said it too, until my second child, Oliver, was born. Now the phrase hits me in the chest when I hear it. Oliver’s birth was fine until it wasn’t. When he was four days old, he stopped breathing in my arms […]
IT’S THAT TIME OF THE YEAR AGAIN! We’ve got ALL SORTS of amazing Hope for the Holidays things planned. We’ve got some AMAZING giveaways planned for our sixth annual Hope for the Holidays 10 Days of Giveaways in December that we’ll run again December 6-15 in our Parent Hub on Facebook, giving away over $10,000 of adaptive equipment, things to make […]
Join us as David Ford, president of Hope for HIE’s board of directors, shares his HIE story, his calling to give back to Hope for HIE, and encouragement for others to get involved in a myriad of ways as the giving season begins. Learn how to get started with Giving Tuesday, Hope for HIE’s 100 for $100 campaign, and the […]
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