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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Welcome to Holland — Part 2

Welcome to Holland — Part 2

January 16th, 2016  | Family Stories  |  By ANN GOELLER

Any parent of a child with special needs knows the poem “Welcome to Holland.” In the beginning, this poem resonated with me. I was in shock over my child’s diagnosis, hypoxic ischemic encephalopathy, and what that would mean for our future. But as I came to grips with our life and our new normal, the poem became a cliche that I just […]

Why I hired my own Santa

Why I hired my own Santa

December 22nd, 2015  | Family Stories  |  By Michelle L. Hughes

There are some universal truths in life: what goes up must come down, the pen is mightier than the sword, and the worst line to be in is the one for Santa Claus. So here I am, a mom of two kids: one bright and bubbly 10-year-old daughter and one very handsome little 3-year-old guy, who happens to have HIE. […]

Anika’s Story

Anika’s Story

December 21st, 2015  | Family Stories  |  By ANN GOELLER

After four months of feeling alone, worrying and wondering, Anika Fella decided to try to find other families like hers, who had gotten the diagnosis of HIE. Her daughter Chloe had suffered HIE when she separated from the placenta during the delivery of her twin sister. To their family, HIE had so far meant more than a month in the […]

Melanie’s Story

Melanie’s Story

December 15th, 2015  | Family Stories  |  By ANN GOELLER

First, their lives were consumed with grief, then uncertainty, guilty and trauma. Reeling from the grim prognosis for their daughter, who had suffered apnea and uncontrollable seizures 12 hours after birth, Melanie Riggins turned to the internet. She was terrified at the words the doctor had told her: little to no quality of life. And she needed something to grab […]

Three Sleeps

Three Sleeps

December 4th, 2015  | Family Stories  |  By MARISSA DANIELLE

In the summer of 2014, I attended a writers’ workshop at The Mazza Institute at The University of Findlay, in Ohio. My mother, a retired school librarian, has gone to these children’s literature conferences for roughly 25 years. She has encouraged me to go several times, and finally, I made the time. She has been my biggest fan, always referring […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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