fbpx
Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

BLOG

Giving Back through Heartbreak

Giving Back through Heartbreak

December 2nd, 2015  | Family Stories  |  By ANN GOELLER

Her little girl in the NICU was the biggest baby there — far bigger than the preemies in the other beds — but Zoe was also the sickest. Zoe had been resuscitated and placed on a cooling mat after she was born. She had suffered extensive brain damage, her mother Nina Young said. “I couldn’t find anyone like me, the […]

Finding Hope in the Dark

Finding Hope in the Dark

November 30th, 2015  | Give Hope  |  By ANN GOELLER

Before she found a group of families whose children also were affected by HIE, Emmy Heaton felt alone. She had joined other online groups, including one for children who had been cooled at birth, but many of the children there were mostly unaffected. Emmy’s son, Aj, who is now 3, was initially given a very grim prognosis. Since then, he […]

Baby Grey’s Story

Baby Grey’s Story

November 24th, 2015  | Give Hope  |  By ANN GOELLER

With his baby boy in a NICU bed, Nick Burton knew what had physically happened to his son at birth, but he kept hearing three letters from the doctors: HIE. Nick knew baby Grey had aspirated meconium at birth, had to be intubated and then was sent to special NICU for head cooling. He also knew Grey’s heart was damaged […]

Fall Sensory Fun for Everyone

Fall Sensory Fun for Everyone

October 27th, 2015  | Sensory  | Therapy  |  By CLARISSA STUCKENBERG

Are you looking for a fun Fall craft that is doable for any ability, mess-free, and festive?  My son Huxley and I found a great way to make some fun decorations using a pumpkin shape cut out of construction paper, a little plastic wrap, some blobs of paint and some tape. I laid the pumpkin on top of plastic wrap, added […]

About Tagging Me in That Post…

About Tagging Me in That Post…

October 22nd, 2015  | Advocacy  | Care  | HIE Education  | Special Needs  |  By KARISSA SHEPHERD

A few months ago, a post made the rounds about a boy with Cerebral Palsy completing a triathlon. What a wonderful achievement for that boy to complete such an intensely physical feat, seemingly against the odds! But with the sharing of that video, came the onslaught of beautiful, well-meaning friends who kept tagging me on that photo and sharing the […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

SIGNUP

Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.

  • This field is for validation purposes and should be left unchanged.