Can you believe it’s almost time for Hope for HIE’s 4th annual Hustle for Hope 5K Event? Last year, we doubled our number of participants, had several Hustle Hosts bring communities together all around the world, and raised more than $60,000 to help our mission of improving the quality of life for families impacted by HIE. This year, we plan […]
We don’t know about you, but we think it’s time to recognize, celebrate, and empower the unsung HIEroes of the HIE community — the brothers and sisters who stand strong alongside their HIE siblings and those they remember who have passed. Sometimes, our Super Sibs can bear a significant load: they are asked to take on a lot, go forth […]
As any parent may attest, there are times throughout the year when supporting your child’s schoolwork can cause stress. After all, when — no — why did they change math? As a parent or caregiver of a medically complex child who may undergo several planned or unplanned hospitalizations, you may know all too well the stress that comes with navigating […]
As we close out 2023, it’s amazing to take a moment before digging into our full, comprehensive Impact Report and looking at the HIElights of a banner year for our organization. It included a significant investment and expansion of our support programs and services, advocacy and collaboration in research. Without your support, we cannot do this work. Take a look […]
Hope for HIE was thrilled to talk to our Medical Advisory Board member, Dr. Adam Numis (pediatric neurologist and epilepsy specialist), to learn about updates regarding several Neonatal Seizure Registry (NSR) studies. These studies — some of which have concluded and others which are still in progress — will help us understand neonatal seizures, their relationship with HIE, and the […]
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