Long nights in the NICU sparked a dream in one HIE mother, and she wasn’t going to take no for an answer. Sara Baker Pendleton met her daughter, Ansley, at 2 weeks old in the NICU, and was so struck by her perfect little feet. The way she held them reminded her of first position in ballet. Ansley’s prognosis was […]
Having a baby with HIE quickly became isolating for one mom, who desperately was looking for support. Nicolette felt like she was drowning, trying to process emotions she couldn’t even put words to in a world she never knew existed and didn’t understand, she said. A social worker told her about a Facebook group where she could find support called […]
What started as a bond over the internet has grown into a lifelong friendship. For Nikki Lang and Brittany Beimourtrusting, their friendship began with the common experience of their little girls — born only a day apart — suffering HIE. They met on the Hope for HIE parent forum on Facebook and leaned on each other for support as they […]
As we kick off this year’s holiday giving campaign, we want to take a moment to show you where your donations go when you make a donation to Hope for HIE. We are a non-profit organization focused on providing resources and support to the families of children who have suffered HIE, or hypoxic ischemic encephalopathy. We are entirely run by […]
Maybe Mama Gump went a little far “ensuring Forrest’s education” on a hot summer evening with the principal, but as a special needs parent, I watched Forrest Gump in a whole new light, after my son was born and diagnosed with hypoxic ischemic encephalopathy and cerebral palsy. This life is a bit more complex raising and trying to empower a child with disabilities, […]
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