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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Why We Took Our Son to a Ballgame Instead of Physical Therapy

Why We Took Our Son to a Ballgame Instead of Physical Therapy

October 22nd, 2015  | Self Care  | Therapy  |  By BETSY PILON

Life can be pretty overwhelming when your precious child receives the diagnosis of hypoxic ischemic encephalopathy (HIE). Your hopes and dreams of motherhood shift, and your life is intensely focused on therapies, doctor appointments and research. You wonder how people are able not only to attend all of these appointments, but also manage to implement the slew of home programs that occupational, physical […]

What Should’ve Been – An HIE Dad’s Poem

October 14th, 2015  | Care  |  By NICK BURTON

What should’ve been A dream unfulfilled, but forever imagined So unextrordinary a fantasy, unrealized Should’ve been What never was Bonding time and cord cutting A wheelchair ride and balloons A clever announcement with rustic font Never was What was Barely saved, Mama shaking Just met, say goodbye for ambulance trip Signing forms and breaking down Papa yells at strangers to […]

GoTo Seat

GoTo Seat

February 19th, 2015  | Equipment  |  By ANN GOELLER

Firefly makes multiple excellent products for children who struggle with mobility or seating. For some children, the GoTo seat has been a great fit. For our little one, it doesn’t work in all situations because of her low trunk control and head support. We have the size 2. If the seat our daughter is in can recline, it works well. […]

Fisher Price Space Saver high chair

Fisher Price Space Saver high chair

February 19th, 2015  | Equipment  |  By ANN GOELLER

This compact high chair was a lifesaver for us when our daughter was smaller. We used it for positioning, feeding and therapy. The size of the chair is great, because it is very portable and easily straps onto a typical chair. We used this often when we went out to eat or to visit friends. The seat itself works great […]

Melissa & Doug Jumbo Knob puzzles

Melissa & Doug Jumbo Knob puzzles

February 19th, 2015  | Toys  |  By ANN GOELLER

These puzzles are excellent for little ones who struggle with fine motor skills. We have at least three of these puzzles. The knobs are the perfect size for a little one who struggles with fine motor skills and grabbing items with their hands. The puzzles also come in different themes, including shapes and colors and farm animals. We found several […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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