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February is Full Term Awareness Month

February is Full Term Awareness Month

February 10th, 2024  | Advocacy  | News

February is #FullTermNICU awareness month. The majority of #HIE babies are born full term. Does it surprise you to learn that around 50% of #NICU babies are full term? There is a significant disparity in representation of full term families in #Neonatology research, family-centered care leadership, and QI. 99% of NICU family advisory councils are made up of #Preemie parents. […]

HIE Research Recap

HIE Research Recap

February 9th, 2024  | Advocacy  | News

It has been a busy week of new research being published and shared, and while we regularly share these in our Advocacy & Research group, this week seemed like a good time to post in one easily accessible area. As always, we share relevant research that is focused on the many aspects of HIE — decreasing the impact and incidence […]

2024 HUSTLE FOR HOPE 5K: FAST FACTS

2024 HUSTLE FOR HOPE 5K: FAST FACTS

January 25th, 2024  | Advocacy  | Fundraising  | Hustle for Hope 5K

Can you believe it’s almost time for Hope for HIE’s 4th annual Hustle for Hope 5K Event? Last year, we doubled our number of participants, had several Hustle Hosts bring communities together all around the world, and raised more than $60,000 to help our mission of improving the quality of life for families impacted by HIE. This year, we plan […]

Join Hope for HIE’s #SuperSib Squad!

Join Hope for HIE’s #SuperSib Squad!

January 22nd, 2024  | Advocacy  | Child Life Resources  | News

We don’t know about you, but we think it’s time to recognize, celebrate, and empower the unsung HIEroes of the HIE community — the brothers and sisters who stand strong alongside their HIE siblings and those they remember who have passed. Sometimes, our Super Sibs can bear a significant load: they are asked to take on a lot, go forth […]

Get Hustlin’: Become a Hustle for Hope 5K Host!

Get Hustlin’: Become a Hustle for Hope 5K Host!

December 12th, 2023  | Advocacy  | Fundraising  | Hustle for Hope 5K  | News

In the world of Hope for HIE, we believe in the power of community, the strength of unity, and the unwavering resilience of families navigating the challenges of neonatal and pediatric-acquired HIE. And what better way to embody these principles than by becoming a 2024 Hustle for Hope 5K Host? We’ve witnessed the profound impact of our 5K fundraiser on […]

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