Hey you. Yes you, with a 3-day-old hair-do and last night’s formula on your shirt. When was the last time you took care of yourself? When was the last time you were able to pause between breaths, feel your feet on the ground and truly relax? As special needs parents, we often push ourselves to our physical and emotional limits. […]
My husband, Tim, and I celebrated our 17th wedding anniversary in June. This is a day of accomplishment and reflection especially as the years pass and we are faced with challenges many couples will never have to face. I can close my eyes and travel back in time to the 28 year old woman I was waking up on our wedding […]
Recently, we went to Florida Supercon, a comic convention, as a family. Our daughter was very excited because one of her idols, Alex Kingston, who is known for her roles on ER, Arrow and as River Strong in the show Doctor Who, was going to be there signing autographs. Amelie was buzzing with excitement as we neared her table, and squealed […]
Is your child able to roll? Are they able to sit independently? Are they saying any words? Are they able to hold their own bottle? These are the questions I have to ask. It’s my profession, it’s my job, it’s how I determine whether someone’s child will qualify for services. But is it what I wish I had to ask […]
Three years into her journey with HIE, one mother took a moment to reflect on how far her family has come. Jen Greenway gave birth to her baby girl and immediately started on the roller coaster of HIE. Jenessa Hope was not breathing, and had to be resuscitated. Her parent watched helplessly as doctors worked to help their baby girl […]
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