I’ll forever go back to the day I found out I was pregnant – scared; nervous and terrified to have my first baby. I wish more than anything I could rewind my life to that moment and be as naïve as to what could happen as I was back then. I had a picture-perfect pregnancy. Everything went smooth, at least […]
Meet Kaycie Liptak! She’s one of our HIE Awareness Month ambassadors this year, and is a Super Sibling to Drew. Learn more about her journey and experience below in our Q&A: What is your story and connection to HIE? My sister was born with it when I was 6 years old. She spent 69 days in the NICU. It was […]
This was the very first picture of Aiden we took. At the time he was intubated on life support, had IV lines with multiple drugs pumped into his system, placed under heavy sedation, and was on a cooling blanket being cooled into hypothermia to slow the metabolizing of his brain from the Hypoxic event in order to try and reduce […]
This day ten years ago was not a good day. At some point in the wee hours of that morning, about eight hours after Kohl was born, we were abruptly awoken by the resident on call. She had the misfortune to inform us that Kohl started having seizures, had to be intubated and would need to be transported to our […]
Katie Taylor, CEO of Child Life On Call & Podcast, highlighted the HIE parent experience in a recent interview with Betsy Pilon, Executive Director. You can listen below, or where you listen to your favorite podcast:
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.