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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Remembering Jackson: Codi’s Story

Remembering Jackson: Codi’s Story

April 20th, 2022  | Family Stories  | News

I’ll forever go back to the day I found out I was pregnant – scared; nervous and terrified to have my first baby. I wish more than anything I could rewind my life to that moment and be as naïve as to what could happen as I was back then. I had a picture-perfect pregnancy. Everything went smooth, at least […]

Meet the HIE Awareness Ambassadors: Kaycie

Meet the HIE Awareness Ambassadors: Kaycie

April 10th, 2022  | Family Stories  | News

Meet Kaycie Liptak! She’s one of our HIE Awareness Month ambassadors this year, and is a Super Sibling to Drew. Learn more about her journey and experience below in our Q&A: What is your story and connection to HIE? My sister was born with it when I was 6 years old. She spent 69 days in the NICU. It was […]

The powerful connection of HIE babies and their parents

The powerful connection of HIE babies and their parents

January 23rd, 2022  | Family Stories  | News  |  By Evan Pullano

This was the very first picture of Aiden we took. At the time he was intubated on life support, had IV lines with multiple drugs pumped into his system, placed under heavy sedation, and was on a cooling blanket being cooled into hypothermia to slow the metabolizing of his brain from the Hypoxic event in order to try and reduce […]

The Day After: 10 Years Later

The Day After: 10 Years Later

January 14th, 2022  | Cerebral Palsy  | Family Stories  | News  |  By Andy Chrestman

This day ten years ago was not a good day. At some point in the wee hours of that morning, about eight hours after Kohl was born, we were abruptly awoken by the resident on call. She had the misfortune to inform us that Kohl started having seizures, had to be intubated and would need to be transported to our […]

Child Life Podcast Episode: Spotlight on HIE

Child Life Podcast Episode: Spotlight on HIE

January 12th, 2022  | Family Stories  | News

Katie Taylor, CEO of Child Life On Call & Podcast, highlighted the HIE parent experience in a recent interview with Betsy Pilon, Executive Director. You can listen below, or where you listen to your favorite podcast:

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