For the bereaved fathers. A reflection on Nick, from Sara. Nic is a wonderful dad to every child God has blessed our family with, whether it be for one day or a lifetime, but it has always been a decision as parents for each one. Ansley, though…one day he came home from work and I told him, “We have a […]
Join us as we interview Shiru Wanjiru to learn more about her HIE story and connection, finding support, ideas for advocacy, and the need for collaboration to improve access to equipment in areas of disparity. Learn about the nuances of her journey and the connections that have helped her advocate for cultural change and the reduction of stigma surrounding disability. […]
April is HIE awareness month – and one of the daily themes is about Capturing HOPE. Connor experienced a lack of oxygen sometime during delivery – it was nobody’s fault – honestly it happens more than you think. For Connor, the brain damage resulted in Cerebral Palsy that affects motor control of his body. Hope for HIE is a nonprofit […]
Up until 2.5 years ago, I, like most people, had never heard of HIE. Since April is HIE Awareness month, I decided to write a little about our experience. It was Sunday, October 7, 2018. Once again, I hadn’t felt the baby moving. I drove to the hospital to get monitored, thinking it would be like the last few times […]
Hope for HIE *The first year * As days passed by, we were still waiting for big things to happen. Eliana still hadn’t cried, opened her eyes or even showed signs of a suck/swallow reflex. This was hard. She still wasn’t holding her own temperature and they were trying to get her sodium levels balanced. She had so much happening. […]
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