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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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HIElights of Hope

Rokki Garcia & Courtney Lichtenstein’s Story: Fostering Family-Centered Care

April 30th, 2022  | HIElights of Hope

Rokki Garcia and Courtney Lichtenstein are both certified neonatal therapists at Joe DiMaggio Children’s Hospital, specializing in speech-language pathology. They were drawn to the field for the ability to foster deep connections with parents and colleagues from different specialties, as well as for the emphasis on a multidisciplinary approach to the treatment of infants in the NICU. While Rokki and […]

Sam’s Story: Fear is Not an Option

April 30th, 2022  | HIElights of Hope

“She taught me that fear is not an option.” -Diane von Furstenberg Sam and her husband, Drew, have two children, Bren and Sage. Bren, their son with HIE, is five years old, while Sage, their post-HIE baby, is two. During Sam’s pregnancy with Bren, everything went smoothly, and she and Drew were inexorably excited to finally become parents. Sam went […]

Daniela’s Story: For the Boy Who is Not Here, but is Everywhere

April 30th, 2022  | HIElights of Hope

“This was not your fault. This will never be your fault, no matter how many different ways someone tries to tell you it was.” -Angela Miller, from You Are the Mother of All Mothers When Daniela became pregnant with her first child, Calvin, in the spring of 2019, she was over the moon ecstatic. As the manager of an infant […]

Charlotte’s Story: Finding Footprints on the Moon

April 30th, 2022  | HIElights of Hope

“Don’t tell me the sky’s the limit when there are footprints on the moon.” -Paul Brandt Charlotte lives in Greater Manchester, England, with her husband, Stuart, and her HIE daughter, Annie, who was born in 2019. Charlotte and Stuart had been trying for a baby for five years, so when Charlotte finally discovered she was pregnant via in vitro fertilization […]

Chris’s Story: Learning to Love The Struggle

April 30th, 2022  | HIElights of Hope

At the time they found out they would be having a baby, Chris and his wife, Steph, had been happily married for a few years. Chris had been working retail jobs all of his life and was training to become a health care assistant where he lived in Dublin, Ireland. As he was beginning to dip his toes into the […]

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