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Join us as Melanie Riggins, long time volunteer with Hope for HIE, and mom to Zoe and Maisie, talks about her experience with HIE, hypoxic ischemic encephalopathy, her NICU journey, and advice for moving through the different parts of the United States educational system. Melanie is a talented graphic designer and owner of her own freelance company, Melanie Riggins Designs. In […]
With over 5,000 families calling Hope for HIE home around the world, across all outcomes, our support network and information sharing is the largest collection of parent and family voices with neonatal and pediatric acquired hypoxic ischemic encephalopathy. While there is a lot of research that focuses on moderate and severe HIE, outcome tracking data continues to be lacking and […]
HIE is tricky. There is a vast spectrum of outcomes, no two injuries present that same way, and for many, you won’t know how HIE fully affects a child until they are much older because of how brains develop. For some, it will be obvious in the first few months, for others, it may take years until they reach school […]
HIE (Hypoxic Ischemic Encephalopathy) is one of the leading causes of Infantile Spasms, a rare but potentially catastrophic form of epilepsy. In 2019, Hope for HIE was invited to join the Infantile Spasms Action Network to collaborate with other patient groups, researchers and clinicians to move forward research and awareness so patient populations can be educated on what IS looks like and […]
For some of our HIE children, some type of orthotic (sometimes called a brace) may be necessary to help with development, ambulating and balance. There are a few different types of orthotics that may be considered. For some children, simply a shoe insert might be a good tool. For others, a solid or articulated (hinged) Ankle-Foot orthosis (AFO), or a short Supra-Malleolar […]
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