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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

For Parents

WE’RE ALL IN FOR YOU

Whatever is ahead, no matter the outcome, we are with you on your journey to support and empower you.

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NEWLY DIAGNOSED

No matter what lies ahead, take comfort in knowing that you are not alone.

We understand and have been where you are right now, and we want you to know that you are not alone.

Know that thousands of families are here for you in your journey, no matter what is ahead.

The HIE experience is unique, and we want to share with you resources that can help you and your whole family, through our support services and programs, and in collaboration with your medical team. We have parents dedicated to connecting with you as a new parent in this journey, and we look forward to getting to know you and your family.

We host monthly video support groups, just for newly diagnosed families, and a dedicated Facebook group as well with peer support mentors. Be sure to check out the latest events.

When you are ready, we are here, 24/7, to help you.

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THE HIE NICU EXPERIENCE

THE JOURNEY BEGINS

If you have found us early in your journey, we want to provide some more information on what a NICU experience might look like for you and your child.

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THE HIE PICU EXPERIENCE

Sometimes children outside of the neonatal period have a hypoxic event that leads to a PICU – pediatric Intensive Care Unit – experience. We know for these families, it can feel even more isolating, as the “typical” HIE experience involves something going awry before, during or shortly after birth. We have dedicated support for these families as well.

IN REMEMBRANCE

For those children who succumb to their injuries, we cherish their legacies and grieve with their families. Hope for HIE works to ensure that no one faces HIE alone, and is committed to providing support for families facing the loss of their beautiful children gone too soon.

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