Hustle for Hope 5K REGISTRATION OPEN
We're excited to open registration for our THIRD Hustle for Hope virtual 5K on February 15th. Register Now
We're excited to open registration for our THIRD Hustle for Hope virtual 5K on February 15th. Register Now
Join our HIE Awareness Month ambassadors for a Q&A of how to get involved in April's HIE Awareness Month! Register Now
Join our HIE Awareness Month ambassadors for a Q&A of how to get involved in April's HIE Awareness Month! Register Now
April is HIE Awareness Month! We have developed a comprehensive toolkit, calendar of events, and opportunities to dig into advocacy, awareness, education and support to improve the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy. Learn More
We'll be sharing out resources and encouraging our families to get involved in advocacy for HIE. Follow along!
Join us over on our Facebook channel for our Ask the Neurologist Q&A with Dr. Monica Arroyo, Pediatric Neurologist, Joe DiMaggio Children's Hospital. Learn More
VIDEO SUPPORT GROUP STARTING FOR NEWLY DIAGNOSED FAMILIES (those within the first year of diagnosis) Parents and legal guardians of HIE children within their first year of diagnosis are invited to participate in our monthly Newly Diagnosed support video call. Led by Hope for HIE's social worker, Vanessa, families will be engaged in a space of healing and hope, no […]
We'll be sharing and encouraging creativity to be showcased within our HIE community. HIE families are some of the most resourceful and creative people we know, and those living with HIE, and those who love people with HIE are incredibly creative. Follow along!
Join in on a special event for HIE Awareness Month, bringing the whole family together through cooking! You provide the ingredients, we'll provide the fun! Once you register, we'll send out the recipe card you'll need, and we'll ship out a couple of fun items to get you cooking. The class is FREE, with a suggested donation of $25/family. The […]
Join in to hear some exciting research from Dr. Brian Kalish, Medical Advisory Board member, clinician and researcher with SickKids Toronto. Head of the Kalish lab, he will share his perspective and passion for developing new therapies to improve the quality of life for children with HIE. LEARN MORE
VIDEO SUPPORT GROUP STARTING FOR LOSS FAMILIES (those who have lost their children due to HIE) Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in our monthly support group. Led by Hope for HIE's social worker, Vanessa, families will be engaged in a space of support, […]
Wear your favorite HIE Awareness Month or HIE swag, share it via social media, and encourage your support system to join in and wear theirs, too! Want to take it a step further? Spread some spirit and appreciation for your local NICU or medical team!
We'll be sharing and encouraging how SUPPORT is created, cultivated and celebrated within our HIE community. Join in on the weekly theme of HOPE INSPIRES SUPPORT!
Join Dr. Danielle Barber, member of Hope for HIE's Medical Advisory Board, HIE parent, pediatric neurologist and lab researcher at Children's Hospital of Philadelphia, to learn how she not only has taken the perspective as a HIE parent and child neurologist to advise patients and families on how to navigate the therapy maze. LEARN MORE
Each year on April 20th, we recognize, remember, mourn, and honour our HIE children who have passed away. We honor their families and their memories through a worldwide wave of light.
Hope for HIE President, David Ford, will be participating in a panel as a part of the AAP Neonatal-Perinatal Section for newer trainees in their Carousel Care webinar series.
Parents and legal guardians of HIE children are invited to participate in our monthly support video call, held every third Thursday of the month at 8 pm EST. Led by Hope for HIE's social worker, Vanessa, families will be engaged in a space of healing and hope, no matter where their journey may take them, connecting with others to build […]
Take part in the final week of HIE Awareness Month with the theme of HOPE INSPIRES COMMUNITY.
Join HIE Loss coordinator, Becky Detlef, for a casual connection meet up via Zoom. Meeting Link
Join AAC experts Dr. Carole Zangari and Tina Moreno, MA, CCC-SLP, to learn all about assistive and augmentative communication. LEARN MORE
Grandparents and Extended Family Members of HIE children are invited to participate in our monthly support video call. Led by Hope for HIE's social worker, Vanessa, families will be engaged in a space of healing and hope, no matter where their journey may take them, connecting with others to build connections and support. These events will be hosted on a […]
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