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Max's 3rd Birthday

$2,095.00 raised
GOAL: $2,000.00

Max had a traumatic start to his little life.  After a "textbook" pregnancy, he surprised us and stopped moving at 37 weeks.  He was ushered into the world via emergency c-section and quickly resuscitated.  He was transferred to a higher level NICU and placed on a cooling blanket for three days, in an effort to lessen his risk for death or disability.  He was diagnosed with HIE - hypoxic ischemic encephalopathy.  

Today, Max is a relatively healthy almost three year old!  He has spastic diplegic cerebral palsy as a result of his HIE.  He doesn't let that get him down!  He participates in a mainstream preschool during the day, and spends many nights in physical and occupational therapy helping to MAXimize his potential.

The first year was a blur for all of us; healing from a traumatic start both physically and mentally for our family was difficult.  However, what made a significant difference in our parenting and mental health was connecting to Hope for HIE, an online support network for families facing a range of outcomes from HIE.  We wanted to give back at his first birthday, and March of Dimes was our charity of choice, as there was no other official charity at the time dedicated to supporting, educating and raising awareness for HIE.

Hope for HIE took a large step in 2013 to become a charitable organization, recognized by the IRS as a 501(c)3 in September 2014. This has allowed doors to open up to grow the organization and set a platform in place to first and foremost, be a support to the families that find the organization, worldwide.  

Funding Hope for HIE means that new families will more easily find the support and connections they need.  Families whose children are hospitalized or pass on will have more in-depth support.  It means developing deeper partnerships with medical communities to change the dialogue of how providers interact with parents.  It means more resources for researching prevention and treatments.   It means advocating for inclusion and for a more accessible world for all children. 

Join us as we honor Max by celebrating the lives of ALL HIE children and their families and showing that there truly is Hope in the Journey.  

Who's donating: from West Bloomfield, MI donated. Thank you!
  • Betsy Pilon
    donated 2015-05-11 13:31:23 -0400
  • Kent Richards
    donated 2015-04-25 12:00:00 -0400
  • Erin Modrzynski
    donated 2015-04-23 10:21:17 -0400
  • Alyson Antolick
    donated 2015-04-23 10:02:27 -0400
  • Holly Parisi
    donated 2015-04-23 08:04:36 -0400
  • Meagan Corona
    donated 2015-04-23 07:09:12 -0400
  • Emily Kucinich
    donated 2015-04-22 17:03:47 -0400
  • Nick&Liz Soper
    donated 2015-04-17 13:08:07 -0400
  • Emily Reed
    donated 2015-04-16 12:45:00 -0400
  • Barbara Pilon
    donated 2015-04-16 12:00:00 -0400
  • Scott Giard
    donated 2015-04-04 19:04:23 -0400
  • Jean & Bob Peplinski
    donated 2015-04-04 12:37:15 -0400
  • Sara Morgan
    donated 2015-03-23 12:38:17 -0400
  • June & Danny Quinn
    donated 2015-03-17 09:43:04 -0400
  • Bob & Sue Pilon
    donated 2015-03-06 10:21:14 -0500
  • Jamie O'Keefe
    donated 2015-03-04 21:47:34 -0500
  • Susan Gammon
    donated 2015-03-03 19:58:04 -0500
  • Denise Robinson
    donated 2015-03-03 17:58:06 -0500
  • Nora VanDusen
    donated 2015-03-02 20:32:37 -0500
  • Michelle Clancy
    donated 2015-03-02 15:27:00 -0500
  • Jill Uswajesdakul
    donated 2015-03-02 09:06:26 -0500
  • Katherine Marchelletta
    donated 2015-03-01 22:23:20 -0500
  • Kari Burger
    donated 2015-03-01 21:15:04 -0500
  • Korey Aaron Brown Morley
    donated 2015-03-01 21:01:20 -0500
  • Stefanie Accardo
    donated 2015-03-01 20:57:18 -0500
  • Kimberly Bickersteth
    donated 2015-02-27 18:22:55 -0500
  • Marc Van Poperin
    donated 2015-02-27 17:22:04 -0500
  • Melissa Bobby
    donated 2015-02-27 10:00:12 -0500
  • Chris Michela
    donated 2015-02-27 09:24:31 -0500
  • Teresa Zawacki
    donated 2015-02-27 06:37:42 -0500

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