Max's 3rd Birthday
Max had a traumatic start to his little life. After a "textbook" pregnancy, he surprised us and stopped moving at 37 weeks. He was ushered into the world via emergency c-section and quickly resuscitated. He was transferred to a higher level NICU and placed on a cooling blanket for three days, in an effort to lessen his risk for death or disability. He was diagnosed with HIE - hypoxic ischemic encephalopathy.
Today, Max is a relatively healthy almost three year old! He has spastic diplegic cerebral palsy as a result of his HIE. He doesn't let that get him down! He participates in a mainstream preschool during the day, and spends many nights in physical and occupational therapy helping to MAXimize his potential.
The first year was a blur for all of us; healing from a traumatic start both physically and mentally for our family was difficult. However, what made a significant difference in our parenting and mental health was connecting to Hope for HIE, an online support network for families facing a range of outcomes from HIE. We wanted to give back at his first birthday, and March of Dimes was our charity of choice, as there was no other official charity at the time dedicated to supporting, educating and raising awareness for HIE.
Hope for HIE took a large step in 2013 to become a charitable organization, recognized by the IRS as a 501(c)3 in September 2014. This has allowed doors to open up to grow the organization and set a platform in place to first and foremost, be a support to the families that find the organization, worldwide.
Funding Hope for HIE means that new families will more easily find the support and connections they need. Families whose children are hospitalized or pass on will have more in-depth support. It means developing deeper partnerships with medical communities to change the dialogue of how providers interact with parents. It means more resources for researching prevention and treatments. It means advocating for inclusion and for a more accessible world for all children.
Join us as we honor Max by celebrating the lives of ALL HIE children and their families and showing that there truly is Hope in the Journey.