Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy


July is Disability Pride Month

July 3rd, 2024


Celebrating Disability Pride Month: Advocacy and Hope for HIE

In recent years, the month of July has gained significance beyond just summer heat and fireworks—it’s become a time to celebrate Disability Pride Month. This observance, rooted in advocacy and empowerment, shines a light on the achievements and struggles of the disability community worldwide. But where did Disability Pride Month originate, and how does Hope for HIE embody its core values through advocacy?

The Origin of Disability Pride Month

Disability Pride Month traces its roots to the Americans with Disabilities Act (ADA), signed into law on July 26, 1990. This landmark legislation aimed to protect the civil rights of individuals with disabilities, prohibiting discrimination and ensuring equal opportunities in employment, public accommodations, transportation, and more. The ADA marked a crucial step forward in recognizing and affirming the rights and dignity of people with disabilities.

Over time, Disability Pride Month has evolved to encompass a broader celebration of disability identity, culture, and community. It’s a time for individuals to embrace their disabilities, reject stigmas, and promote visibility and acceptance.

Hope for HIE’s Commitment to Advocacy

At the heart of Disability Pride Month is advocacy—standing up for the rights, inclusion, and well-being of people with disabilities. This is where organizations like Hope for HIE (HIE stands for Hypoxic Ischemic Encephalopathy) play a pivotal role. Hope for HIE is not just an organization; it’s a community-driven force dedicated to supporting families affected by HIE (a condition caused by oxygen deprivation to the brain before, during, or shortly after birth), driving forward research, building educational resources, and empowering through advocacy.

Central to Hope for HIE’s mission is its commitment to advocacy for the disability community. By raising awareness about HIE and supporting families through education, resources, and emotional support, Hope for HIE empowers individuals to navigate the challenges of living with disabilities caused by HIE. This advocacy extends beyond the immediate needs of affected families; it seeks to foster understanding and empathy in society at large, and improve the quality of life for children and families impacted by neonatal and pediatric-acquired HIE.

Embracing Diversity and Celebrating Achievement

Disability Pride Month encourages us to celebrate diversity and recognize the valuable contributions of individuals with disabilities in all facets of life. It challenges stereotypes and promotes a culture of inclusivity and respect. Through events, campaigns, and social media initiatives, Disability Pride Month amplifies voices, shares stories of resilience, and highlights achievements that inspire and empower.

Hope for HIE exemplifies these values by championing the rights and potential of individuals with disabilities. By providing a platform for advocacy and education, it promotes a future where all individuals, regardless of ability, can thrive and contribute meaningfully to society, which you’ll see present in the relaunched THIS IS WHAT HOPE LOOKS LIKE campaign.

Looking Forward

As we commemorate Disability Pride Month this July, let’s reflect on how far we’ve come in advancing disability rights and inclusivity—and acknowledge the work that still lies ahead. Through organizations like Hope for HIE and the collective efforts of advocates worldwide, we can build a future where disability pride is celebrated every day, where barriers are dismantled, and where every individual is valued for their unique abilities and contributions.

Let’s continue to raise our voices, share our stories, and advocate for a more inclusive world. Together, we can turn hope into action and make meaningful strides towards equality and justice for all.

Recommended Reading:

Disability Pride Month History:

Because we’ve had a few questions asking for clarification about “pride months” between LGBTQ & Disability, we are happy to share more information about the Intersection of Disability & LGBTQ (Data, Research & Advocacy):

  • https://wid.org/whats-up-wid-lgbtqia-disability-intersectionality-transcripts
  • https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10449449
  • https://www.hrc.org/resources/understanding-disabled-lgbtq-people
  • https://www.loc.gov/lgbt-pride-month/about


  • World Health Organization (WHO) – Disability and Health: Provides global perspectives on disability and health issues, including policies and initiatives.
  • International Disability Alliance (IDA): A network of global and regional organizations advocating for the rights of persons with disabilities.
  • Disability Rights International: Protects the rights of people with disabilities through legal action and advocacy worldwide.
  • International Labour Organization (ILO) – Disability Inclusion: Provides resources and advocacy for disability-inclusive employment and workplace policies.
  • Inclusion International: Global federation advocating for the human rights of people with intellectual disabilities and their families.
  • European Disability Forum (EDF): Advocates for the rights of people with disabilities in Europe through policy, campaigns, and events.
  • Disability Rights Advocates (DRA): U.S.-based organization that has expanded its impact to work on global disability rights issues.
  • Disability Rights UK: Works to create a society where disabled people have the same rights and opportunities as everyone else.
  • Disabled People’s International (DPI): A global organization committed to promoting the rights of people with disabilities through advocacy and awareness-raising.
  • Human Rights Watch – Disability Rights: Reports, research, and advocacy on disability rights issues globally.
  • ADA National Network: Provides information, training, and guidance on the Americans with Disabilities Act (ADA) and disability rights.
  • Disability Pride NYC: Information about Disability Pride events in New York City and beyond.
  • National Council on Independent Living (NCIL): Advocacy organization advancing the rights of people with disabilities through grassroots efforts.
  • Disability Rights Education & Defense Fund (DREDF): National law and policy center focusing on advancing disability rights through education, legislation, and advocacy.
  • Disability Visibility Project: A community partnership dedicated to recording, amplifying, and sharing disability stories and culture.
  • Autistic Self Advocacy Network (ASAN): Advocates for the rights and acceptance of autistic people through public policy and advocacy.
  • National Disability Rights Network (NDRN): Provides legal representation and advocacy for individuals with disabilities in the U.S.
  • Disability Rights International: Protects the rights of people with disabilities through legal action and advocacy worldwide.



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