Meet Kaycie Liptak!
She’s one of our HIE Awareness Month ambassadors this year, and is a Super Sibling to Drew. Learn more about her journey and experience below in our Q&A:
What is your story and connection to HIE?
My sister was born with it when I was 6 years old. She spent 69 days in the NICU. It was caused by a doctors mistake.
How did you first hear about HIE?
I was only 6 when my mom told me about it so I didn’t fully understand it.
How did you first hear about Hope for HIE?
My mom became friends with six other moms that lived locally to us and went on a moms retreat. I’m pretty sure they were one of the first to do a moms retreat.
What do you want the world to know most about your story and HIE?
I want parents with non-HIE kids to know what it’s like for us. And for “super sibs” to know they aren’t alone since it’s so easy to feel alone!
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.