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The Neonatal Seizure Registry (NSR) is an alliance of nine US centers that have worked together since 2012 to study the causes and consequences of neonatal seizures. Over the past four years, the NSR team has recruited and followed 300 children with neonatal seizures to understand how to the length of treatment may influence development and the risk of epilepsy, as well as the impact of having a child with neonatal seizures on parents’ well-being.
The results from this Patient Centered Outcomes Research Institute study “Continued Anticonvulsants After Neonatal Seizures: A Comparative Effectiveness Study” will be presented as part of the Pediatric Academic Societies webinar series on July 28, 2020 (see https://2020.pas-meeting.org/ for webinar details).
Hope for HIE is a proud partner of NSR, working with other alliance members to improve the quality of care and quality of life for families that are affected by neonatal seizures, and HIE.
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