One of the biggest challenges of being thrust into an unexpected journey with a baby facing HIE and/or neonatal seizures is sometimes feeling anxiety when people ask if you have any questions.
Enter the Neonatal Seizure Registry — a research group that has been advancing care and understanding of the whole family impact of neonatal seizures, and building helpful tools to help new parents facing these challenges.
The NSR team, with Natalie Field leading the question prompt list project, has published a helpful tool for newly diagnosed families facing neonatal seizures. This was recently published in Pediatric Neurology and is accessible to download below.
We know facing HIE and neonatal seizures can be overwhelming. We are better together and a proud partner of the Neonatal Seizure Registry since 2019.
To connect in to Hope’s comprehensive support network, including access to our licensed social worker, certified child life specialist, and trained Peer Support Mentors, visit HIE.Support.
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