When Karissa Shepherd’s son was born and she saw the words Hypoxic Ischemic Encephalopathy in his records, she turned to the internet.
The Australian mom found a small Yahoo support group and a blog by one of the Hope for HIE founders. When a Facebook group formed, Karissa was one of the first members.
Australian mom Claire Greer is one of the co-founders of Hope for HIE, which grew out of the vision of a few moms who wanted to help parents of children with HIE, or Hypoxic Ischemic Encephalopathy, connect.
She shares her HIE story and how she has found hope in her journey.