Finding her own hope

When Karissa Shepherd’s son was born and she saw the words Hypoxic Ischemic Encephalopathy in his records, she turned to the internet.


The Australian mom found a small Yahoo support group and a blog by one of the Hope for HIE founders. When a Facebook group formed, Karissa was one of the first members.



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From confused and lonely to building a community

Australian mom Claire Greer is one of the co-founders of Hope for HIE, which grew out of the vision of a few moms who wanted to help parents of children with HIE, or Hypoxic Ischemic Encephalopathy, connect.

She shares her HIE story and how she has found hope in her journey.




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Share your story

Over the next month, we will be sharing stories of families affected by HIE with one main focus: finding hope in the journey.

We would love to hear your story!

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