Hope for HIE is a US-based 501(c)(3) non-profit organization with a worldwide network and presence, dedicated to promoting awareness, education and support for Hypoxic Ischemic Encephalopathy (HIE). The organization was incorporated legally within the State of Michigan in 2013, confirmed by the IRS in 2014, and is governed by a US-based Board of Directors. Our Board is 100% volunteer-based.

The Hope for HIE Board of Directors:


Contact us:

Betsy Pilon - President

Matt Kegyes - Treasurer

Lindsay Vanzandt - Secretary

Annie Goeller - Vice President, Marketing

Jennifer Kegyes - Vice President, Family & Professional Outreach

David Ford - Vice President, Advocacy


Our volunteer community is large and located in multiple countries around the world. The United Kingdom, Australia, Canada and the United States are our largest represented countries today. Because our mission is to have international reach, this important group of volunteers (mainly parents) give time, talent and treasure to six committees that support Hope for HIE's mission and vision with a wide range of skills and experience.



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