Through Hope for HIE, families impacted by HIE receive support through online groups, in-person meetups and gifts to families who have suffered a loss, are going through a long hospital stay or starting their HIE journey.
But, after the recent successful holiday campaign, we wanted to do even more for our families.
So Hope for HIE dedicated some of the money raised to a giveaway for our families, ranging from Hope for HIE merchandise, to a paid trip to our annual retreat, to a parents night out.Read more
Recently, with the success of our holiday giving campaign, we wanted to do more to give back to our families.
So, we did a holiday giveaway. We randomly selected families who entered for prizes that ranged from a parents night out to free registration to one of this year's retreats to Hope for HIE merchandise.
And we want to do more.
But we want to hear from our families about what we should be doing to give back to our families, and how that process should look.
Please take a few moments to answer our survey. Your feedback is deeply appreciated: https://www.surveymonkey.com/r/SBLRGPD
When she lost her son, the support from her HIE family immediately flowed in.
Jessica Mizell had learned about Hope for HIE through a social worker at the hospital her son, Waylon, was transferred to. She had already gotten to know many other HIE families during her journey.
In his short 15 months, Woodrow David knew love and life, and his mother is working to keep his memory alive.
For Kate Goudy, her son Woodrow, who was severely injured at birth, will continue to serve as an inspiration to be the woman and mother who would have made him proud.
And Hope for HIE has helped her along that path, she said.
When Nykole Nichols has a question about her son, she can’t always turn to the friends and family she always thought she would.
With Jude, who was injured at birth and is severely affected, it’s often more complicated. Their questions are about equipment, specialists and therapies.
“We can't just call our family or friends and ask for advice like typical first time parents. Our questions are usually questions that they couldn't answer. All they can do is just be there and be supportive. Be our shoulder to cry on,” Nykole said.