Throughout our lives, we form communities.
Our hometown, our cliques of friends in school, our co-workers, our couples friends and then the families we want our kids to grow up with.
I have been a part of some amazing communities in my life. And when my daughter suffered a birth injury, hypoxic ischemic encephalopathy or HIE, I needed another one in my life.
By Andy Chrestman
I remember standing in our son’s bedroom the day after he was born and bracing myself for the real possibility that we would lose our first and only child.
Kohler Henson Chrestman was born the previous day and, because of an abrupt lack of blood and oxygen to his brain, he was born with severe, global brain damage.
For one HIE mom, hope has taken her across the country this year.
Betsy Pilon, president of the Hope for HIE foundation, has traveled from her home state of Michigan to Texas, New York and New Orleans so far this year, making her slogan for 2016 “Have hope, will travel.”
NeoBrain, a Canadian group that worked with Hope for HIE on a video for families in the NICU after their babies suffered an HIE event, needs our help!
They have entered their video into a competition, and if they win, the video would be viewed even more, helping spread awareness of HIE.
Here is how you can help:
- Visit http://bit.ly/IHDCYHTalks2016
- Watch the movie "Resource for Parents of Babies Who Need Hypothermia or Cooling Treatment After Birth."
- And like it!
That's all you need to do to help spread awareness! Thank you for your help!