By Andy Chrestman
I remember standing in our son’s bedroom the day after he was born and bracing myself for the real possibility that we would lose our first and only child.
Kohler Henson Chrestman was born the previous day and, because of an abrupt lack of blood and oxygen to his brain, he was born with severe, global brain damage.
For one HIE mom, hope has taken her across the country this year.
Betsy Pilon, president of the Hope for HIE foundation, has traveled from her home state of Michigan to Texas, New York and New Orleans so far this year, making her slogan for 2016 “Have hope, will travel.”
NeoBrain, a Canadian group that worked with Hope for HIE on a video for families in the NICU after their babies suffered an HIE event, needs our help!
They have entered their video into a competition, and if they win, the video would be viewed even more, helping spread awareness of HIE.
Here is how you can help:
- Visit http://bit.ly/IHDCYHTalks2016
- Watch the movie "Resource for Parents of Babies Who Need Hypothermia or Cooling Treatment After Birth."
- And like it!
That's all you need to do to help spread awareness! Thank you for your help!
Through 26 miles of walking, breakfast overlooking Central Park and plenty of New York-style pizza, two of the women who made Hope for HIE what it is today got to know each other a little better.
Claire Greer, one of the founders of Hope for HIE, and Betsy Pilon, president of the board for the nonprofit organization, met up in person in New York City after meeting online four years ago.