The making of Hops for Hope

After years of talking about hosting a fundraiser, Andy and Sarah Chrestman finally decided they wanted to do it.

 

After several weeks of planning, and a lot of sweat, they raised approximately $14,000 for Hope for HIE, beating their initial goal of $7,500.

 

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For the new moms

To new moms:

This picture popped up on my news feed. It's a picture of my then 2 month old HIE son GMO; God's Miracle On earth - GianRaul. He is now 4 years old.

This picture was taken only days after we returned home from 1 month in the NICU and another month in a rehabilitation hospital.

As I look at this picture I remember how scared I was and how I was so scared of the future and the unknown. At that time the fear that I dreaded was the special needs world. 

 

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Having a child after HIE

By Amy Cutler

 

I always knew that I want to be a mom.

I was lucky enough to grow up with two sisters and understood how important siblings are.

After we got married, we waited a little bit of time before deciding that we wanted to begin our family and our journey to becoming parents.

It was certainly not an easy one from the beginning. After some time, we were excited to find out that we were expecting a little baby girl.

 

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What I have learned: one year in

By Nicolette Friend

 

Faith is now 13 months old, and I wanted to put together some of "what we've learned" to share with you.

She's currently admitted for the 7th time since our 2 month NICU stay, which has given me the time to get this together. Faith is pretty severely affected and will probably be my forever baby. But regardless of future outcomes we all start this journey with the same pain and fear. So I hope these thoughts encourage you. 

 

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Don't forget about yourself

By Jessica Balestrin

 

Hey you. Yes you, with a 3-day-old hair-do and last night’s formula on your shirt.

When was the last time you took care of yourself? When was the last time you were able to pause between breaths, feel your feet on the ground and truly relax?

As special needs parents, we often push ourselves to our physical and emotional limits. Caring for a child with complex needs means our own needs come second. Always.

We’re fighting battles everyday: arguing with funding and insurance agencies, seeking out the best treatments for an increasing list of diagnoses, juggling appointments, all while trying to let our kids be kids.

Oh, and let’s assume you have a house to manage, maybe a job and an extended family to care for. Who has time for self-care, right?

 

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