For Julie Keon, hope was initially most intense in the early years of her daughter’s life.
Since then, her hope has shifted, but that doesn’t mean she is hopeless, Julie said.
“I have learned that hope is most intense in the early years but as life presents itself and you begin to settle in to how things will be. It doesn’t mean that I have become hopeless. It’s just that my hopes have changed and evolved,” she said.
In the year since their daughter was born, hope has taken on multiple meanings for Justin and Gracielle Yan.
From the joy of seeing little Mila open her eyes to looking forward to her smile, hope has become an important part of their lives, Justin said.
“I could never have guessed how powerful that word would be for the next year of our lives: hope,” Justin said.
After his son was born, Andy Chrestman quickly got a crash course in brain injury, and found there are no simple answers.
More than a year into their journey of trying to find answers, Andy and his wife Sarah came across Hope for HIE and found an instant community.
“The brain is the control center of our lives and when it is damaged, there are thousands of issues - some obvious, some less so - that you have to deal with. Getting answers to questions and finding common ground to dealing with these issues was very challenging. But when we found Hope for HIE, we finally found our community,” Andy said.
After her son was born, Lindsay Vanzandt just wanted answers.
She found medical journals, with tons of terms she didn’t understand. And then she found Hope for HIE, and so many other families just like hers.
“We immediately felt at home in the Facebook group, where we got more answers and more hope than we did at the hospital,” she said.
After her daughter was born, Megan Ross was desperate for answers.
But all the doctors could tell her was that little Cari started having seizures 15 hours after birth due to suffering a loss of oxygen at some point before or during birth.
They had no idea what their future would hold.
“No doctor could tell us what she would be able to do. There was little information or direction on what to expect,” Megan said.