When Karissa Shepherd’s son was born and she saw the words Hypoxic Ischemic Encephalopathy in his records, she turned to the internet.
The Australian mom found a small Yahoo support group and a blog by one of the Hope for HIE founders. When a Facebook group formed, Karissa was one of the first members.
Australian mom Claire Greer is one of the co-founders of Hope for HIE, which grew out of the vision of a few moms who wanted to help parents of children with HIE, or Hypoxic Ischemic Encephalopathy, connect.
She shares her HIE story and how she has found hope in her journey.
By Nicolette Friend
You know, I think I find myself giving up hope.
Or maybe hope is just changing into something I didn't know it could be.
It's getting harder to work hard at things that seem unattainable. I work on her strength and flexibility because life sure would suck harder without those. But she's content with just laying in my arms and staring in my eyes.
Any parent of a child with special needs knows the poem "Welcome to Holland."
In the beginning, this poem resonated with me. I was in shock over my child's diagnosis, hypoxic ischemic encephalopathy, and what that would mean for our future.
But as I came to grips with our life and our new normal, the poem became a cliche that I just didn't want to hear any more.Read more