Finding her own hope

When Karissa Shepherd’s son was born and she saw the words Hypoxic Ischemic Encephalopathy in his records, she turned to the internet.


The Australian mom found a small Yahoo support group and a blog by one of the Hope for HIE founders. When a Facebook group formed, Karissa was one of the first members.



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From confused and lonely to building a community

Australian mom Claire Greer is one of the co-founders of Hope for HIE, which grew out of the vision of a few moms who wanted to help parents of children with HIE, or Hypoxic Ischemic Encephalopathy, connect.

She shares her HIE story and how she has found hope in her journey.




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Share your story

Over the next month, we will be sharing stories of families affected by HIE with one main focus: finding hope in the journey.

We would love to hear your story!

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Why I "gave up hope," and what that really means

By Nicolette Friend

You know, I think I find myself giving up hope.
Or maybe hope is just changing into something I didn't know it could be.
It's getting harder to work hard at things that seem unattainable. I work on her strength and flexibility because life sure would suck harder without those. But she's content with just laying in my arms and staring in my eyes.





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Welcome to Holland -- Part 2


Any parent of a child with special needs knows the poem "Welcome to Holland."

In the beginning, this poem resonated with me. I was in shock over my child's diagnosis, hypoxic ischemic encephalopathy, and what that would mean for our future.

But as I came to grips with our life and our new normal, the poem became a cliche that I just didn't want to hear any more.

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