Why We Took Our Son to a Ballgame Instead of Physical Therapy

Life can be pretty overwhelming when your precious child receives the diagnosis of hypoxic ischemic encephalopathy (HIE). Your hopes and dreams of motherhood shift, and your life is intensely focused on therapies, doctor appointments and research. You wonder how people are able not only to attend all of these appointments, but also manage to implement the slew of home programs that occupational, physical and speech therapists hand out. And what about actually having the time to enjoy motherhood?

The first 18 months of my son Max’s life were spent this way. I cried almost every single day during that time. I grieved the loss of control, the loss of what could have been, the rough start, the new normal we were forced into. I also made sure we attended every appointment, asked a multitude of questions, implemented every home program and researched every single mainstream and alternative treatment, no matter if they were applicable to my child or not. All in an effort to find to find a “fix.”

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What Should've Been - An HIE Dad's Poem

"What Should've Been," by Nick Burton

What should've been
A dream unfulfilled, but forever imagined
So unextrordinary a fantasy, unrealized
Should've been

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GoTo Seat

Firefly makes multiple excellent products for children who struggle with mobility or seating. For some children, the GoTo seat has been a great fit. For our little one, it doesn't work in all situations because of her low trunk control and head support.

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Fisher Price Space Saver high chair

This compact high chair was a lifesaver for us when our daughter was smaller. We used it for positioning, feeding and therapy.

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Melissa & Doug Jumbo Knob puzzles

These puzzles are excellent for little ones who struggle with fine motor skills.

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