The color gray

Watching her daughter on stage, reciting a poem she wrote, is a memory Karla Contreras will never forget.

Karla was surprised when she learned her 8-year-old daughter Elisa, who suffered HIE at birth, would be sharing a poem at her school's poetry slam. But as soon as she got the note from her daughter's teacher, Karla knew she wouldn't miss it.

 

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Giving herself a gift

By Jamie Wyatt

When Cooper was born I was a mess and everything was so baby/NICU focused I realized I was neglecting myself greatly.

When I got some particularly concerning news one day, I went in to an anxious despair. I wallowed in it for about 24 hours then I gave myself a gift; I’m a very visual person so I visualized a beautifully wrapped square box.

 

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Will we be OK?

When we got discharged from the NICU just about seven years ago, I had a million questions. The most burning desire for me was to connect to other families who had gone through what we had just been through... a traumatic birth, hypothermic cooling, scary MRIs and EEGs, tubes and wires, and infinite unknowns ahead of us. I had to go to google to understand what Hypoxic Ischemic Encephalopathy meant, despite being warned not to. 

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You don't want to be me

You don’t want to be me.

And I get it. There was a time I didn’t want to be me either.

 

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The latest in HIE treatment research

By Nick Burton

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In 2015, when our son, Grey, was born, there were not many interventions available to neonatologists to help lessen the brunt of an HIE injury.

In fact, we had to make a decision within our son’s first two hours of life to be transferred from what we thought was a high-level NICU to a nearby university hospital so that our son could receive brain cooling—the only option available to help protect his brain from further injury.

A week or so later, while our newborn son’s condition remained critical, an attending physician had a difficult conversation with me and my wife. She said, “we’ve gotten good at saving lives like Grey’s, but we haven’t caught up with what comes next.”

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