Hope for HIE is excited to announce the largest grant in foundation history with Medtronic plc’s involvement as a platinum Partner in Hope.
“This is a historic day for Hope for HIE, to have the partnership from Medtronic allowing us to have the time and resources to move forward our mission to improve the quality of life for children and families affected by HIE - Hypoxic Ischemic Encephalopathy,” stated David Ford, President, Hope for HIE.Read more
We are very excited to welcome Dr. Danielle Barber, a pediatric neurologist, laboratory-based researcher from Children's Hospital of Philadelphia, and HIE mom, to our Medical Advisory Board. She will be working with Hope for HIE to not only represent the HIE parent experience, but bridge her clinical work and laboratory work with mouse models in HIE research to build connections with research. Her full bio is below.Read more
Epilepsy is one of the more common diagnoses to come from HIE, and there are certain types of seizure disorders that HIE children are more prone to developing. According to research studies, HIE makes children five times more vulnerable to developing epilepsy at some point in their life. In addition, HIE is a leading cause of several rare types of epilepsy. We are grateful to participate in many different research and organizational collaboratives to address this population within the HIE community, and work to move forward treatments and therapies to improve the quality of life for families with HIE and epilepsy.Read more
We are very excited to welcome Dr. Christopher Carosella from Johns Hopkins to our Medical Advisory Board. He will be working with us to bring more education to our community in the area of neurological-based sleep issues.Read more