After his son was born, Andy Chrestman quickly got a crash course in brain injury, and found there are no simple answers.
More than a year into their journey of trying to find answers, Andy and his wife Sarah came across Hope for HIE and found an instant community.
“The brain is the control center of our lives and when it is damaged, there are thousands of issues - some obvious, some less so - that you have to deal with. Getting answers to questions and finding common ground to dealing with these issues was very challenging. But when we found Hope for HIE, we finally found our community,” Andy said.
After her son was born, Lindsay Vanzandt just wanted answers.
She found medical journals, with tons of terms she didn’t understand. And then she found Hope for HIE, and so many other families just like hers.
“We immediately felt at home in the Facebook group, where we got more answers and more hope than we did at the hospital,” she said.
After her daughter was born, Megan Ross was desperate for answers.
But all the doctors could tell her was that little Cari started having seizures 15 hours after birth due to suffering a loss of oxygen at some point before or during birth.
They had no idea what their future would hold.
“No doctor could tell us what she would be able to do. There was little information or direction on what to expect,” Megan said.
His blue eyes lit up the room and his smile, though rare, was beautiful.
His life on earth was not long enough, but in his 17 months, baby Will touched so many lives, his mother Tara Oliver said.
Will suffered HIE after his mother’s splenic artery ruptured when she was pregnant, causing massive internal bleeding. Will was later diagnosed with a seizure disorder and Spastic Quadriplegia Cerebral Palsy.
After being hospitalized repeatedly for respiratory issues, Will gained his angel wings a day after he turned 17 months old.