Warrior on Wheels

By Emily Combs

 

Life with HIE regularly takes its twists and turns.

And sometimes those happen to be literal twists and turns, cycling through Cape Town, South Africa in the world’s largest timed cycle race.

That’s the adventure that Nura Mohamed and her family went on just this spring.

 

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Making a wish come true

Long nights in the NICU sparked a dream in one HIE mother, and she wasn’t going to take no for an answer.

Sara Baker Pendleton met her daughter, Ansley, at 2 weeks old in the NICU, and was so struck by her perfect little feet. The way she held them reminded her of first position in ballet. Ansley’s prognosis was grim after birth, and Sara often heard from doctors that she wouldn’t be able to do anything, but she had hope.

 

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No more isolation

Having a baby with HIE quickly became isolating for one mom, who desperately was looking for support.

Nicolette felt like she was drowning, trying to process emotions she couldn’t even put words to in a world she never knew existed and didn’t understand, she said.

 

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A special bond

What started as a bond over the internet has grown into a lifelong friendship.

For Nikki Lang and Brittany Beimourtrusting, their friendship began with the common experience of their little girls -- born only a day apart -- suffering HIE. They met on the Hope for HIE parent forum on Facebook and leaned on each other for support as they adjusted to parenthood.

 

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Give HOPE this holiday season

As we kick off this year’s holiday giving campaign, we want to take a moment to show you where your donations go when you make a donation to Hope for HIE.

We are a non-profit organization focused on providing resources and support to the families of children who have suffered HIE, or hypoxic ischemic encephalopathy. We are entirely run by volunteers, who are parents of children with HIE. And we represent thousands of families across the globe with all outcomes, from children who are unaffected by their injury to those we have lost.

When you give to Hope for HIE, your donation supports our mission of helping families impacted by HIE.

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