Visiting her village

Making the trip from Tanzania to Kenya to visit the village where Wanjiru Muigai-Mnaro grew up was important to her.

The adventure would allow her 1-year-old son Malik to meet his 99-year-old great grandfather and see the village where his mother lived for 11 years, she said.

“It was also a chance for him to enjoy the little things the village has to offer like farm animals, beautiful scenery, playing with his cousins who live in the village and he had loads of fun,” she said.

 

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Warrior on Wheels

By Emily Combs

 

Life with HIE regularly takes its twists and turns.

And sometimes those happen to be literal twists and turns, cycling through Cape Town, South Africa in the world’s largest timed cycle race.

That’s the adventure that Nura Mohamed and her family went on just this spring.

 

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Making a wish come true

Long nights in the NICU sparked a dream in one HIE mother, and she wasn’t going to take no for an answer.

Sara Baker Pendleton met her daughter, Ansley, at 2 weeks old in the NICU, and was so struck by her perfect little feet. The way she held them reminded her of first position in ballet. Ansley’s prognosis was grim after birth, and Sara often heard from doctors that she wouldn’t be able to do anything, but she had hope.

 

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No more isolation

Having a baby with HIE quickly became isolating for one mom, who desperately was looking for support.

Nicolette felt like she was drowning, trying to process emotions she couldn’t even put words to in a world she never knew existed and didn’t understand, she said.

 

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A special bond

What started as a bond over the internet has grown into a lifelong friendship.

For Nikki Lang and Brittany Beimourtrusting, their friendship began with the common experience of their little girls -- born only a day apart -- suffering HIE. They met on the Hope for HIE parent forum on Facebook and leaned on each other for support as they adjusted to parenthood.

 

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