Long nights in the NICU sparked a dream in one HIE mother, and she wasn’t going to take no for an answer.
Sara Baker Pendleton met her daughter, Ansley, at 2 weeks old in the NICU, and was so struck by her perfect little feet. The way she held them reminded her of first position in ballet. Ansley’s prognosis was grim after birth, and Sara often heard from doctors that she wouldn’t be able to do anything, but she had hope.
What started as a bond over the internet has grown into a lifelong friendship.
For Nikki Lang and Brittany Beimourtrusting, their friendship began with the common experience of their little girls -- born only a day apart -- suffering HIE. They met on the Hope for HIE parent forum on Facebook and leaned on each other for support as they adjusted to parenthood.
As we kick off this year’s holiday giving campaign, we want to take a moment to show you where your donations go when you make a donation to Hope for HIE.
We are a non-profit organization focused on providing resources and support to the families of children who have suffered HIE, or hypoxic ischemic encephalopathy. We are entirely run by volunteers, who are parents of children with HIE. And we represent thousands of families across the globe with all outcomes, from children who are unaffected by their injury to those we have lost.
When you give to Hope for HIE, your donation supports our mission of helping families impacted by HIE.Read more
Maybe Mama Gump went a little far “ensuring Forrest’s education” on a hot summer evening with the principal, but as a special needs parent, I watched Forrest Gump in a whole new light, after my son was born and diagnosed with hypoxic ischemic encephalopathy and cerebral palsy.
This life is a bit more complex raising and trying to empower a child with disabilities, and taking on a society that is still woefully behind on inclusion and accommodations to ensure equity. It’s a battle many of us fight with school districts, parks and recreation programs, and even the perceptions of our neighbors.Read more