For the fourth year in a row, Hope for HIE held 10 Days of Giveaways, where families can enter drawings for giveaways ranging from equipment to gift cards.
Through these giveaways, we hope to make life a little easier for our families affected by HIE. This year, we were able to give 44 families a little extra HOPE for the holidays!Read more
With over 5,000 families calling Hope for HIE home around the world, across all outcomes, our support network and information sharing is the largest collection of parent and family voices with neonatal and pediatric acquired hypoxic ischemic encephalopathy. While there is a lot of research that focuses on moderate and severe HIE, outcome tracking data continues to be lacking and our community actually is an incredible repository for tracking outcomes. With mild HIE, many families have come across the "brush off" for long term outcomes.Read more
The Hustle for Hope 5K is one of many activities taking place throughout the month of April, HIE Awareness Month, to increase awareness, education, and support of Hypoxic Ischemic Encephalopathy through Hope for HIE, the premiere organization dedicated to awareness, education and support.
Hope for HIE chose the virtual format to meet the needs of its global community, allowing for flexibility, diversity and inclusion. Participants pick a date, time and location (indoors or outdoors) that works best and can complete the 5K by any form of mobility (walk, run or roll).
Dear Hope for HIE community,
2019 was an incredible year for our organization. We grew to serve over 5,000 families worldwide, which brought upon wider recognition from our clinical partners, opening doors to collaboration.
Recognized by Facebook for Community Building
We began the year being recognized by Facebook as a leading community on their platform at the 2019 Facebook Communities Summit, as one of 400 hand-selected attendees.
HIE Awareness Month
We selected the theme of "Hope Never Ends" for our 2019 HIE Awareness Month in April and had unprecedented reach and participation. Hope for HIE board member, David Ford, worked with legislators to recognize April as HIE Awareness Month, and hosted a delegation of local families to be recognized. We spent time on April 20th honoring and remembering the legacies of our HIE children taken too soon on HIE Remembrance Day. We told the stories of over 500 families through social spotlights, our HIE Remembrance page on our website, and video stories across our social channels.Read more
The holidays can be a hard time for families of children with special needs.
Running around to visit family, often toting extra supplies with you, talking about the realities our children face and playing the never-ending comparison game when being around other children all adds up to extra stress. Add that to the extra to-do list of holiday shopping, cooking and errands, and the holidays can feel less and less joyful.
Ellen Seidman, who runs the blog "Love That Max," talked with Hope for HIE about how to survive the holidays.