In the early days after his daughter was born, David Ford felt overwhelmed and scared.
David and his wife Heidi were overjoyed their daughter survived such a difficult start to life, but were unprepared for how to deal with the emotions and questions over the uncertainty of Scarlett’s future, he said.
Through Hope for HIE, families impacted by HIE receive support through online groups, in-person meetups and gifts to families who have suffered a loss, are going through a long hospital stay or starting their HIE journey.
But, after the recent successful holiday campaign, we wanted to do even more for our families.
So Hope for HIE dedicated some of the money raised to a giveaway for our families, ranging from Hope for HIE merchandise, to a paid trip to our annual retreat, to a parents night out.Read more
Recently, with the success of our holiday giving campaign, we wanted to do more to give back to our families.
So, we did a holiday giveaway. We randomly selected families who entered for prizes that ranged from a parents night out to free registration to one of this year's retreats to Hope for HIE merchandise.
And we want to do more.
But we want to hear from our families about what we should be doing to give back to our families, and how that process should look.
Please take a few moments to answer our survey. Your feedback is deeply appreciated: https://www.surveymonkey.com/r/SBLRGPD