A new support system

In the early days after his daughter was born, David Ford felt overwhelmed and scared.

David and his wife Heidi were overjoyed their daughter survived such a difficult start to life, but were unprepared for how to deal with the emotions and questions over the uncertainty of Scarlett’s future, he said.



Read more

Helping other families

When he was asked to join the board for Hope for HIE, Nick Burton immediately knew he wanted to help families, just like they had helped his.



Read more

How to be an advocate

As parents to children with special needs, we have a lot of roles: caregiver, nurturer, juggler

But one of the most important ones is advocate.

Read more

Giving back to our families

Through Hope for HIE, families impacted by HIE receive support through online groups, in-person meetups and gifts to families who have suffered a loss, are going through a long hospital stay or starting their HIE journey.


But, after the recent successful holiday campaign, we wanted to do even more for our families.


So Hope for HIE dedicated some of the money raised to a giveaway for our families, ranging from Hope for HIE merchandise, to a paid trip to our annual retreat, to a parents night out.

Read more

Take our survey!

Recently, with the success of our holiday giving campaign, we wanted to do more to give back to our families.

So, we did a holiday giveaway. We randomly selected families who entered for prizes that ranged from a parents night out to free registration to one of this year's retreats to Hope for HIE merchandise.

And we want to do more.

But we want to hear from our families about what we should be doing to give back to our families, and how that process should look.

Please take a few moments to answer our survey. Your feedback is deeply appreciated: https://www.surveymonkey.com/r/SBLRGPD

Spread the word Volunteer Donate


get updates