How to be an advocate

As parents to children with special needs, we have a lot of roles: caregiver, nurturer, juggler

But one of the most important ones is advocate.

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Giving back to our families

Through Hope for HIE, families impacted by HIE receive support through online groups, in-person meetups and gifts to families who have suffered a loss, are going through a long hospital stay or starting their HIE journey.


But, after the recent successful holiday campaign, we wanted to do even more for our families.


So Hope for HIE dedicated some of the money raised to a giveaway for our families, ranging from Hope for HIE merchandise, to a paid trip to our annual retreat, to a parents night out.

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Take our survey!

Recently, with the success of our holiday giving campaign, we wanted to do more to give back to our families.

So, we did a holiday giveaway. We randomly selected families who entered for prizes that ranged from a parents night out to free registration to one of this year's retreats to Hope for HIE merchandise.

And we want to do more.

But we want to hear from our families about what we should be doing to give back to our families, and how that process should look.

Please take a few moments to answer our survey. Your feedback is deeply appreciated:

Grieving together

When she lost her son, the support from her HIE family immediately flowed in.

Jessica Mizell had learned about Hope for HIE through a social worker at the hospital her son, Waylon, was transferred to. She had already gotten to know many other HIE families during her journey.



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Feeling less isolated

In his short 15 months, Woodrow David knew love and life, and his mother is working to keep his memory alive.


For Kate Goudy, her son Woodrow, who was severely injured at birth, will continue to serve as an inspiration to be the woman and mother who would have made him proud.


And Hope for HIE has helped her along that path, she said.





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