Grieving together

When she lost her son, the support from her HIE family immediately flowed in.

Jessica Mizell had learned about Hope for HIE through a social worker at the hospital her son, Waylon, was transferred to. She had already gotten to know many other HIE families during her journey.

 

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Feeling less isolated

In his short 15 months, Woodrow David knew love and life, and his mother is working to keep his memory alive.

 

For Kate Goudy, her son Woodrow, who was severely injured at birth, will continue to serve as an inspiration to be the woman and mother who would have made him proud.

 

And Hope for HIE has helped her along that path, she said.

 

 

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Support for everyone

When Nykole Nichols has a question about her son, she can’t always turn to the friends and family she always thought she would.

With Jude, who was injured at birth and is severely affected, it’s often more complicated. Their questions are about equipment, specialists and therapies.

“We can't just call our family or friends and ask for advice like typical first time parents. Our questions are usually questions that they couldn't answer. All they can do is just be there and be supportive. Be our shoulder to cry on,” Nykole said.

 

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Clicking with another family

A mom’s search to find someone to take her family’s photos ended up with a new connection between two families impacted by HIE.

Jamie Burt wasn’t happy with her 4-year-old daughter Remilyn’s school photos since she had her eyes closed and wasn’t looking at the camera, but also wasn’t sure who should take family photos for them.

For HIE families like theirs, family photos can be a challenge, especially when their child, like Remi, is unable to sit or stand.

 

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Support in the hardest times

When she had to go through the toughest decisions and emotions in her life, Lauren Macke found support from a group of parents who had been there.

 

Lauren’s son Jonah was born early and went without oxygen for 14 minutes. He was diagnosed with HIE and went through cooling therapy.

 

Testing showed his brain damage was extensive, and Lauren was left to decide what to do next.

 

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