Before she found a group of families whose children also were affected by HIE, Emmy Heaton felt alone.
She had joined other online groups, including one for children who had been cooled at birth, but many of the children there were mostly unaffected.
Emmy’s son, Aj, who is now 3, was initially given a very grim prognosis. Since then, he has been diagnosed with cerebral palsy, autism, developmental delay, and most recently epilepsy. He also has one of the cutest smiles in the world.
When Aj was about 6 months old, Emmy found Hope for HIE, and didn’t feel so alone anymore. She has support from around the globe.Read more
With his baby boy in a NICU bed, Nick Burton knew what had physically happened to his son at birth, but he kept hearing three letters from the doctors: HIE.
Nick knew baby Grey had aspirated meconium at birth, had to be intubated and then was sent to special NICU for head cooling. He also knew Grey's heart was damaged and he had a collapsed lung. But that didn’t explain HIE, and what that would mean for his family long-term. So, he turned to Google, a terrifying place for any new parent, but he found something else -- a foundation called Hope for HIE. Finding that group saved him, Nick said.Read more