Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

Who We Are


We are the premiere global organization dedicated to Awareness, Education & Support for Neonatal & Pediatric Acquired Hypoxic Ischemic Encephalopathy (HIE).


Who We Are | Welcome | History | Mission Statement
People | Board of Directors | Medical Advisory Board
Media Inquiries | Press Kit

We believe that hope is found in the journey, regardless of outcome.

Hope for HIE began as a virtual network of parents seeking to connect after their children had been diagnosed with HIE (Hypoxic Ischemic Encephalopathy). Since beginning on Facebook in 2010, the network has grown to serve thousands of families worldwide. The organization was incorporated legally in the state of Michigan in 2013, confirmed as a 501c3 nonprofit in 2014, and is governed by a U.S.-based Board of Directors

Hope for HIE’s Board of Directors is responsible for the strategic direction and management of foundation operations, through a paid Executive Director. We have a robust internationally-represented volunteer community that helps facilitate our support network and organizational initiatives.

We hope you will join us as we work together to improve the quality of life for children and families through developing more resources, education and support for families like ours. You can help most by becoming more involved. Donate, volunteer or help us spread the word about Hope for HIE.

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