We are continuously looking at ways to build community and improve the quality of life for children and families affected by HIE through Awareness, Education and Support.
Hope for HIE began with a virtual network of parents seeking to connect after their child had been diagnosed with HIE (Hypoxic Ischemic Encephalopathy). We have families all around the globe, and many local groups that host meet ups, awareness and fundraising events, and other opportunities to connect.
We host over 100 topic-focused and location-based support groups found on Facebook. Upon requesting, you will be sent a few questions to be verified before adding you into our network. All questions need to be answered before you will be granted entry.
If you don’t have Facebook, reach out to us to be connected to a local HIE family.
We all have the power to influence decision-makers and the systems, policies and conditions they create for our loved ones. For example, you could speak briefly during the comments portion of your local school board meeting to acknowledge the wonderful support your loved one receives or take five minutes to send an email to your state representative in order to voice your support for or concerns about legislation that impacts the quality of medical care your loved one receives.
Enlisting elected officials by requesting a proclamation or letter of support can be an effective way to introduce them to Hope for HIE and educate them about HIE and the organization’s mission. Use the editable template to request a letter or support or proclamation. Please send an email to David Ford before you contact state and federal legislators to avoid duplication.
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