Hope for HIE has a strict non-solicitation policy. Hope for HIE exists first and foremost to be a community for parents to network and connect with others whom they can share information regarding the common diagnosis of HIE. The advice, suggestions and resources we all share with one another is paramount to our collective membership and organizational purpose.
We do not allow solicitation for income generating purposes, direct marketing, or recruiting of our community for business ventures through any Hope for HIE outreach such as our social media forums, websites, in person Hope for HIE-affiliated gatherings, etc. without the expressed written permission granted by the Hope for HIE Board of Directors.
Any posts or comments that promote providing goods or services to generate personal income must be approved by the admin team or Board of Directors first, as we work diligently to protect our families from predatory practices, regardless of the type or service being offered.
The only exception is in the MEMBER MARKETPLACE sub-group.
The MEMBER MARKETPLACE group was created to be inclusive, but not intrusive of others and serves as a place where some applicable business ventures, direct selling/MLM posts are welcomed.
We recognize the need for members to share fundraisers they are participating in, contests their children are in, personal support pages, etc. These items can be mentioned once a week in our WEEKLY MENTIONS thread that is posted every Monday.
With the evolution of social media, and the explosion of predatory business practices, many companies encourage the use and abuse of social networking to build business - both on and offline. These tactics include sending personal messages promoting the products or services one represents to members, attempting to recruit others to sell products, in-person pressuring of sales, and vague messages to entice members to message a person to learn more, where they receive a sales pitch.
Hope for HIE finds this to be a grave conflict of interest and it has the potential to possibly exploit those who are emotionally fragile and going through a traumatic time. All Hope for HIE outlets, including the website, online sub-groups and offline local support groups, operate under the Hope for HIE rules and guidelines.
All outlets point people to the MEMBER MARKETPLACE group, should they wish to utilize that space for promotion of the products they are selling for financial gain, no matter the use of the funds.
If a community member is found in violation of this policy, depending on the severity and nature, they will be given a warning, or may be removed from the group or other Hope for HIE channels permanently.
Should you have any questions about this policy, are a victim of predatory business practices in our network, or would like to report someone who is violating these policies, please contact a Hope for HIE admin or Board of Director member.