HIE Awareness Month

Welcome to 2021 HIE Awareness Month!

Every April, we work together as a global TEAM of families, clinicians, researchers, partners, supporters and fans, to spread awareness into the world about neonatal and childhood acquired Hypoxic Ischemic Encephalopathy. This year, the community theme is TEAM HOPE. Our team is filled with dedicated members, and over 6,000 strong, across all ages and outcomes.

We both know all too well the isolation that can exist for our families. Each of us experienced HIE with our children, and we know when we connect as a community, we are Better Together. HIE continues to be its own unique type of NICU experience, different innings, a culture of game play all its own, with many disparities in care, communication and connection that we must continue to work together on.

We are proud to assemble our team to make this happen, and need your help to bring more team members onto the roster, rounding the bases to decreasing the incidence of HIE (2-3 per 1,000 live births), and improving the quality of life for children and families impacted by HIE. We’ve assembled all sorts of ways you can spread Awareness, Education and Support this April. We look forward to working together for a HOME RUN!

Download the Toolkit

KEY DATES & EVENTS

April 1 – HIE Awareness Month Kick-Off
April 1 at 8 pm EST on Clubhouse app: HIE Awareness chat through The NICU MOMS Club
April 1 – May 15 – Hustle for Hope 5K
April 6 – HIE, Cooling & Newborn Brains Educational Event
April 14 – Bridging Care from the NICU to Post-Discharge Educational Event
April 20 – HIE Remembrance Day
April 21 – HIE & Seizures Educational Event
April 21 – NICU Leadership Forum HIE Parent Panel
April 22 – 12th Annual International Newborn Conference Participation
April 27 – HIE Research & Long Term Outcomes, Mild HIE Educational Event

Last updated: 3/23/2021

Events Calendar

HIE REMEMBRANCE DAY

We honor, remember and mourn our HIE children who have been lost to HIE during Awareness Month on April 20th – HIE Remembrance Day. We ask for your support and help recognize these families.

Use one of Hope for HIE’s remembrance Facebook frames to show solidarity with our loss community
Post to our WAVE OF LIGHT post that we will start on April 20th with a photo of a candle you are lighting, where you are in the world and any message you have for our loss families
Use the hashtags #hieremembrance, #hieremembranceday, and #hieloss in your social media posts
Share posts of our loss families that we will be sharing to honor them, let people know that loss is one of the outcomes of HIE, and bring more awareness to our loss community
If you are one of our loss families, share your story, write a blog post for our website, share a poem, share how you honor your child by contacting annie@hopeforhie.org.
Pay your respects to our families at our online memorial below.