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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

HIE Awareness Month

Welcome to 2022 HIE Awareness Month!

We come together every April – families, clinicians, researchers, partners, supporters and others in our global community – to spread awareness into the world about neonatal and childhood acquired Hypoxic Ischemic Encephalopathy. This year, the community theme is HOPE INSPIRES.

Our community is over 7,000 strong, across all ages and outcomes, from all over the world, and every day we are inspired by the advocacy, creativity, connection, support and community that is built.

We both know all too well the isolation that can exist for our families. Each of us experienced HIE with our children, and we know when we connect as a community, we are Better Together.

The last few years have been a challenge for our community and world. But through it all, our community has grown stronger, and as usual, finds creative ways to move forward in their journey with HIE in the best way possible.

This year, we are eager to celebrate as much as we can, continue lifting up one another, connecting, and focus on relentlessly pursuing a better world for our children and families.

We hope you will join us in this effort, and have outlined several ways to be involved this April in the toolkit, and below.

Download the Toolkit

KEY DATES & EVENTS

Last updated: 4/25/2022

Events Calendar

HIE REMEMBRANCE DAY

We honor, remember and mourn our HIE children who have been lost to HIE during Awareness Month on April 20th – HIE Remembrance Day. We ask for your support and help recognize these families.
  1. Use one of Hope for HIE’s remembrance social media frames to show solidarity with our loss community
  2. Post to our WAVE OF LIGHT post that we will start on April 20th with a photo of a candle you are lighting, where you are in the world and any message you have for our loss families
  3. Use the hashtags #hieremembrance#hieremembranceday, and #hieloss in your social media posts
  4. Share posts of our loss families that we will be sharing to honor them, let people know that loss is one of the outcomes of HIE, and bring more awareness to our loss community
  5. If you are one of our loss families, share your story, write a blog post for our website, share a poem, share how you honor your child by contacting outreach@hopeforhie.org.
  6. Pay your respects to our families at our online memorial below.
Online Memorial

SOCIAL MEDIA TOOLS

Feel free to use our social media tools to customize and share YOUR HIE story for more Awareness, Education and Support.

SOCIAL MEDIA CHANNELS – FOLLOW, LIKE, SHARE @HopeforHIE

HASHTAGS

  • #HIEAwarenessMonth
  • #HopeInspires
  • #HopeforHIE

SOCIAL GRAPHICS

Click, download, save and share.


Social Media Profile Frames

While Facebook has sunsetted the profile frame functionality, we can still create them through Canva templates! You can access the templates below, and we encourage everyone to flip your profile pictures across social media to spread awareness!

Tips for design:

  • Upload your photo
  • Tap on the cloud part and hit REPLACE
  • Download as a JPG or PNG and use across your social media accounts, or screenshot to save!
  • You can also adjust any wording or where the elements in the design are
View Template

Daily Story Prompts for Instagram & Facebook Stories, TikTok Stitches

Be sure to tag @HopeforHIE and use the hashtags #HIEawareness #HopeInspires and #HIEawarenessmonth so we can track social media reach!

HIE Awareness Month Colouring Pages

We are so grateful to one of our HIE parents, Zoe, from Scotland who created these beautiful colouring pages that you can download, print, color and share!

Questions? Ideas?
Contact Us

AWARENESS MERCHANDISE

Support HIE Awareness Month and join the TEAM with official limited edition swag!

Adult & Kids Sizes
Infant & Toddler Sizes
Drinkware, Car & Home

Check out our Printable Resources section for other useful tools.

SIGNUP

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