- Who We Are
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- HIElights of Hope
We come together every April – families, clinicians, researchers, partners, supporters and others in our global community – to spread awareness into the world about neonatal and childhood acquired Hypoxic Ischemic Encephalopathy. This year, the community theme is CONNECTED BY HOPE.
Our community is over 8,500 strong, across all ages and outcomes, from all over the world, and every day we are so grateful for the many ways we are able to connect our community: families, caregivers, clinicians, researchers and more.
We know all too well the isolation that can exist for our families. Each of us experienced HIE with our children, and we know when we connect as a community, we are Better Together.
We look forward to sharing the many stories of connection that happen in our community every single day, whether that is online or in-person. We will continue to update this page with our calendar of events and more tools to be used during April!
We hope you will join us in this effort, and have outlined several ways to be involved this April in the toolkit, and below.
Last updated: 4/11/2023
Feel free to use our social media tools to customize and share YOUR HIE story for more Awareness, Education and Support.
The HIE NICU Journey
The HIE PICU Journey
Social Media Profile Frames
While Facebook has sunsetted the profile frame functionality, we can still create them through Canva templates! You can access the template below, and we encourage everyone to flip your profile pictures across social media to spread awareness! It requires you to sign up for a FREE account for Canva, or you can download the graphic below, and use a graphic tool, like those in Instagram or Facebook stories to place a circle photo and save.
Tips for design:
Daily Story Prompts for Instagram & Facebook Stories, TikTok Stitches – COMING SOON!
Be sure to tag @HopeforHIE and use the hashtags #HIEawareness #HopeInspires and #HIEawarenessmonth so we can track social media reach!
HIE Awareness Month Colouring Pages
We are so grateful to one of our HIE parents, Zoe, from Scotland who created these beautiful colouring pages that you can download, print, color and share!
Support HIE Awareness Month and join our global community with official limited edition swag!
Check out our Printable Resources section for other useful tools.
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