We come together every April – families, clinicians, researchers, partners, supporters and others in our global community – to spread awareness into the world about neonatal and childhood acquired Hypoxic Ischemic Encephalopathy. This year, the community theme is TRANSFORMING HOPE.
Our community is over 10,000 families, researchers, clinicians, and community members strong, across all ages and outcomes, from all over the world, and every day we are so grateful for the many ways we are able to transform the landscape of HIE to build brighter futures for more families.
We know all too well the isolation that can exist for our families. Each of us experienced HIE with our children, and we know when we connect as a community, we are Better Together.
We look forward to sharing the many stories of how not only Hope for HIE has transformed over the years, but the many stories in our community that happen every single day, whether that is online or in-person, redefining the word and concept of hope, day after day.
There has never been a more exciting time for the state of neonatal and pediatric HIE in our lifetime, with promise in research, and greater understanding of maximizing quality of life for more children and families.
We hope you will join us in this effort, and have outlined several ways to be involved this April in the toolkit.
We will continue to update our calendar of events and more tools to be used during April! Please reference HIEawarenessmonth.com for the latest event listing.
Last updated: 3/12/2024
Feel free to use our social media tools to customize and share YOUR HIE story for more Awareness, Education and Support.
coming soon!
The HIE NICU Journey
The HIE PICU Journey
Social Media Profile Frames
While Facebook has sunsetted the profile frame functionality, we can still create them through Canva templates! You can access the template below, and we encourage everyone to flip your profile pictures across social media to spread awareness! It requires you to sign up for a FREE account for Canva, or you can download the graphic below, and use a graphic tool, like those in Instagram or Facebook stories to place a circle photo and save.
Tips for design:
Daily Story Prompts for Instagram & Facebook Stories, TikTok Stitches – COMING SOON!
Be sure to tag @HopeforHIE and use the hashtags #HIEawareness #HopeInspires and #HIEawarenessmonth so we can track social media reach!
HIE Awareness Month Colouring Pages
We are so grateful to one of our HIE parents, Zoe, from Scotland who created these beautiful colouring pages that you can download, print, color and share!
Support HIE Awareness Month and join our global community with official limited edition swag!
Check out our Printable Resources section for other useful tools.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Coming soon!