Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

People

Our positive power is in our people, bringing together families, clinicians, researchers and the global community.

Hope for HIE is a US-based 501(c)(3) non-profit organization with a worldwide support network and presence, dedicated to promoting awareness, education and support for Hypoxic Ischemic Encephalopathy (HIE). The organization was incorporated legally within the State of Michigan in 2013, confirmed by the IRS in 2014, and is governed by a US-based Board of Directors. Our Board is 100% volunteer-based.

Hope for HIE’s Board of Directors:
  • Betsy Pilon – Executive Director, Ex-Officio
  • David Ford – President
  • Matt Kegyes – Treasurer
  • Becky Detlef – Secretary
  • Annie Goeller – Vice President, Marketing & Public Relations
  • Jennifer Kegyes – Vice President, Family & Professional Outreach
  • Crystal Kostick – Director at Large

Our volunteer community is large and located in multiple countries around the world. The United Kingdom, Australia, Canada and the United States are our largest represented countries today. Because our mission is to have international reach, this important group of volunteers (mainly parents) give time, talent and treasure to six committees that support Hope for HIE’s mission and vision with a wide range of skills and experience.

Medical Advisory Board:Hope for HIE’s Medical Advisory Board is a multidisciplinary board that provides insight, scientific direction, and expertise to the Foundation from leading academic and medical institutions around the world. The members of the Medical Advisory Board are recognized experts in treating patients, leading research on HIE, and developing best practices in treating HIE and supporting families in their respective disciplines.

Led by Jennifer Kegyes, MA, CCC-SLP, Hope for HIE’s Professional Outreach Chair, this board meets regularly and works on a variety of initiatives to provide insight on patient and family educational materials to ensure accurate information is published, identify collaborations for the foundation, and working with foundation leadership to move the mission of Hope for HIE forward.

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