In the world of Hope for HIE, there’s an incredible community of families who not only navigate the challenges of this journey, but also extend their support, connection, gifts, and stories to uplift others. Each has a remarkable story to share about their “why” — volunteering their time and hearts to Hope for HIE, making a positive impact on countless […]
As we embrace the holiday season’s warmth, joy, and gratitude, we focus on remembering those facing challenges, especially families navigating through neonatal or pediatric-acquired Hypoxic Ischemic Encephalopathy (HIE). This season, let’s extend our generosity and support to Hope for HIE, a beacon of hope for families affected by this condition. By volunteering, donating, and spreading awareness, we can ensure that […]
Epilepsy is a common issue affecting about 50-60% of the children with HIE (hypoxic ischemic encephalopathy), a condition that occurs when a newborn or child’s brain doesn’t get enough oxygen. This can result in different types of seizures, from more common and manageable ones to rarer and more challenging forms. Having epilepsy can be worrying, but it’s essential to know […]
As the holiday season fills the air with scents of cinnamon, pine, or freshly baked cookies, it might seem unusual to start thinking about upcoming summer camp experiences. But believe it or not, the time to plan and register for these enriching opportunities is now! And just as the holiday season has its distinctive traditions, summer camps also offer a unique […]
Losing a child is an indescribable pain, and when that loss is due to a condition like hypoxic ischemic encephalopathy (HIE), it can be especially devastating for parents. During such challenging times, extended family and friends often want to provide support but may struggle with knowing the best ways to offer assistance. Understanding how to be helpful to parents who […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
