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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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New Opportunities to Participate in Research

New Opportunities to Participate in Research

July 19th, 2024  | News  | Research

We are sharing three opportunities to participate in research that may interest our community. More information about each study is available on our Clinical Trial & Research Hub. Parental Feedback for Neonatal Resuscitation (SURV1VE trial): A new protocol for neonatal CPR shows promise to improve outcomes and the study team is looking for parents perspectives on communication, enrollment and consent […]

Ways to Feel Connected through Grief

Ways to Feel Connected through Grief

July 18th, 2024  | Child Life Resources  | HIE Loss  | News  | Resources

Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.

Evaluating Research Articles: A Question Prompt Tool

Evaluating Research Articles: A Question Prompt Tool

July 11th, 2024  | Advocacy  | News  | Research

Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.

“I read this on PubMed…”: Navigating Research Articles

“I read this on PubMed…”: Navigating Research Articles

July 11th, 2024  | Advocacy  | News  | Research

Doing your own research also involves building health literacy skills, and looking beyond headlines for HIE – hypoxic ischemic encephalopathy.

Exploring HIE and Sleep: Q&A with Dr. Renée Shellhaas

Exploring HIE and Sleep: Q&A with Dr. Renée Shellhaas

July 11th, 2024  | HIE Education  | News  | Research  | Resources

After hearing from thousands of families that sleep issues are one of the top unmet needs of our community across all outcomes and impacts, Dr. Renée Shellhaas, a pediatric neurologist and researcher, principal investigator of the Neonatal Seizure Registry, and one of Hope’s esteemed Medical Advisory Board members, and her team launched a survey for our community that aimed at […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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