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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Meet Hope for HIE’s Peer Support Mentors

Meet Hope for HIE’s Peer Support Mentors

September 20th, 2024  | News

Hope for HIE’s Peer Mentorship Program is a cornerstone of our commitment to fostering connection and support within the HIE community. Under the guidance of our dedicated social worker, Haley Thomas, our program offers 1:1 and on-call peer support through a remarkable team of 18 trained and experienced mentors. These mentors are diverse and vital community members, offering compassionate guidance […]

Celebrating 10 Years of Hope!

Celebrating 10 Years of Hope!

September 19th, 2024  | News

Today, September 19, 2024 marks the 10 year anniversary of Hope for HIE as a confirmed charitable nonprofit organization! We are excited to kick off a year long celebration reflecting on the many hands and hearts that have contributed to the continued success of the first global HIE advocacy and support organization that is trailblazing in awareness, advocacy, education, research […]

Neonatal Seizures: Knowing What Questions to Ask

Neonatal Seizures: Knowing What Questions to Ask

September 19th, 2024  | Epilepsy  | News  | Research  | Resources

One of the biggest challenges of being thrust into an unexpected journey with a baby facing HIE and/or neonatal seizures is sometimes feeling anxiety when people ask if you have any questions. Enter the Neonatal Seizure Registry — a research group that has been advancing care and understanding of the whole family impact of neonatal seizures, and building helpful tools […]

Navigating Autism: Key Takeaways

Navigating Autism: Key Takeaways

September 16th, 2024  | News  | Peer Perspective Series  | Resources

As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges. One of our sessions focused on […]

Navigating More Severe Outcomes: Key Takeaways

Navigating More Severe Outcomes: Key Takeaways

September 16th, 2024  | News  | Peer Perspective Series  | Resources

As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges. One of our previous sessions focused […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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