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We are excited to announce that our community now has a new way to support Hope for HIE, through the RoundUp app. Did you know that you can donate your spare change from purchases to Hope For HIE? With RoundUp App you can help improve our community in your daily life without changing a thing. Sign up today! We need […]
Join us as we turn the tables and interview the hosts of the widely popular INCUBATOR podcast, Dr. Ben Courchia and Dr. Daphna Yasova Barbeau. We were excited to come together to showcase the parent and clinician perspectives in this collaboration, learning how each physician approaches care, communication and connection in the NICU, how they prevent burnout, process difficult cases, […]
Carve a path for your child. Carve a path for your family. Carve a path for you. Don’t quit because things look different. Take it slow, remember to breathe, laugh at yourself while doing it, and most of all…have fun. Let others ask questions and stare. We found that most just want to help […]
HOPE CONNECTIONS NEWSLETTER – JUNE ISSUE In this issue: Navigating risk with kids activities and COVID19 Community call for action: Share photos, artwork and more Sleep webinar with Dr. Pryor Craig Just Say HIE podcast episodes Neonatal Seizure Registry update and enrollment Medical Advisory Board Update Partners in Hope program Read Here
FAMILIES ENROLLED IN THE NEONATAL SEIZURE REGISTRY: Enroll Now in the Follow Up Study If your child participated in the Neonatal Seizure Registry study, they are now eligible for a seizure follow-up study. We know as a community how important tracking long term outcomes is, and this new study follows development in children 3 and older. The aim of the […]
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