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We grieve as one community and come together to support our loss families.
It is a heartbreaking fact that we lose too many of our HIE babies and children. We cherish their legacies and grieve with their families. Hope for HIE works to ensure that no one faces HIE alone, and is committed to providing support for families facing the loss of their beautiful children gone too soon.
Every April 20th, we hold worldwide HIE Remembrance Day, where our community pauses and joins into reflect and remember, and create a worldwide wave of light, lighting the night to show support for our loss families.
If you have experienced the loss of your HIE child, we invite you to join with other families who are here to support you. We have built comprehensive support for your entire family — access to a social worker, child life specialist and a peer support network with trained mentors to help you, and your family, through this part of your journey. Our staff can help seek out local bereavement resources, sibling support, provide opportunities for legacy building and memory making, and also provide further connection to foundation loss support programs. We also host a monthly video support group led by our social worker.
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