Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

Board of Directors

Our positive power is in our people, bringing together families, clinicians, researchers and the global community.

Hope for HIE is a US-based 501(c)(3) non-profit organization with a worldwide support network and presence, dedicated to promoting awareness, education and support for Hypoxic Ischemic Encephalopathy (HIE). The organization was incorporated legally within the State of Michigan in 2013, confirmed as a non-profit in 2014 by the IRS.

Hope for HIE’s Board of Directors:


David Ford
Serving since 2016
Matt Kegyes
Serving since 2016
Becky Detlef
Secretary & Loss Coordinator
Serving since 2020


Amy Cutler, OTL/R
Serving since 2021
Crystal Kostick
Serving since 2021
Danielle Barber, MD, PhD
Serving since 2023


Betsy Pilon
Executive Director
Serving since 2013

Our volunteer community is large and located in multiple countries around the world. Because of our global reach and involvement, this important group of volunteers give time, talent and support to move forward Hope for HIE’s mission and vision with a wide range of skills and experience.

Our Board of Directors is always looking for interested and involved professionals to join our board in the following areas:

  • Professional networking
  • Fundraising
  • Strategic development
  • Corporate communication
  • Family outreach
  • Volunteer Management
  • Corporate training
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